Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

26,226 thoughts on “Floxie Hope

  1. John Taylor January 9, 2021 at 9:17 pm Reply

    Tuula,

    My abnormal peristalsis or lack of I intestinal flow was caused by a lack of Magnesium chloride. I have been low on magnesium since I was floxed. Even through I read Caroline Dean’s book on magnesium cover to cover and MgCl oil and lotion it was low. After I got out of the hospital my back muscles were so sore I had to lie flat for most of the day. I would put a towel soaked in Mg Cl solution on my back and get relief. So I read the book again and realized MgCl is very important. For muscle relaxation. I added MG CL in my foot soak and did soaked twice a day. It took 5 months before my muscles stopped aching. I also had to restrict Vitamin D (so as not to use up the free Mg and make my back and stomach sore again.

    In the hospital, the blood doctor gave me bag after bag of magnesium sulphate to raise my Mg level. I wasn’t smart enough to ask for MgCl at that time. It took 4-5 days for my bowels,to,function at all and the they were fairly normal,after a month. Back soreness and charley horse occurred until,the five month time.

    So my stomach problems were caused by the Cipro.

    I had been taking Borax at low levels for 7 months and my blood glucose was dropping before the stomach shut down. I was running 2.3 degrees cold and taking thyroid supplements to,help but thye raised my blood glucose so I would stop and wait for the glucose level to return to 160. So for 5 months my blood glucose cycled between 160 and 190.

    A month after leaving the hospital I lost the Floxie feeling. I believe the Borax had removed enough of the antibiotics that they were not destroying me faster than the supplements could effect repairs. I think the Borax was amd co tiniest to,be helpful.But the problem is repairing one thing can steal nutrients from other area and cause problems there. As my magnesium levels returned closer to,normal, the back soreness wa satisfied amd the magnesium decency signal settled on arthritis in my left thumb only. Now that is gone 28 days a month. I have been able to raise my Vitamin D levels without stealing Mg from my muscles now.

    Caroline Dean recommends 13 magnesium salts for various conditions. I take 5. I keep reading her book to see what else I should be doing.

    I am slow;y getting better. I am only 1.2 degrees cold now. I think the Borax is still helping. I started taking a Boron salt to see if that would remove antibiotics. If it does, it is a minor effect. However today for the fourth time of taking one Boron pill amd hours later I get a significant discharge food intolerance mucus. They I wait a few days for the mucus to stop and do it again. I think the food intolerance mucus in dry form is stored in my organs. Getting rid of it is helpful.

    It is an ongoing saga but I feel more and more I am moving away from the clutches of being a Floxie.

    LOL

    John Taylor

    • Fred S January 14, 2021 at 4:41 pm Reply

      John – quick question. When you say that you lost the Floxie feeling, what were the symptoms you had? Did your energy and joints improve?

      Thanks

      • John Taylor January 18, 2021 at 7:52 pm Reply

        Fred S,

        I had been feeling various improvements for 3 years. Arthritis in my left hand would come and go and I felt it was a sign of Mg level.(At first I had constant pain in both hands.) But I always felt a general malais and would be tired. sluggish during the day. Then I last that feeling and had more energy. I also noticed that repairs of all kinds of things werre going at a faster pace. It was a sharp transition.

        LOL
        John Taylor

  2. Don M January 10, 2021 at 7:07 pm Reply

    John…… I asked this question earlier but you were off line and I never got your opinion. With the Borax I want to use the ounce daily routine but I want to take it at bedtime and let it work over night when there is very little else going on. That way I could take some supplements during the day. Your opinion?

    • John Taylor January 13, 2021 at 7:06 am Reply

      Hi Don,

      You can take Borax a lot of different ways. Your plan is a good option. When you start your morning drink 2-3 ounces of olive oil to remove the Borax and wait two hours so two give the oil time to remove the Borax. The start the supplements. One of the toxic effects of Borax is it will remove the oils anywhere including the brain cell surface so double up on Omega 3 fish oil to recover from t his.

      I do prefer a day or two being on Borax but if I really needed the supplements, I would do your 8 hours. The key is to remove the Borax when you switch back.

      Is the. borax helping?

      I would like to find a less toxic removal agent. I tried a Boron Supplements and it removed food intolerance waste very. Efficiently but raised my blood glucose and lowered my temperature. This is the same result when I take an organ supplement.

      I get 1/3rd of my calories from oil to help the diabetes. Stopping oil just by itself should raise my blood glucose anyway. I kept up the oil while taking Boron. The Boron experiment took 6 weeks as blood glucose doesn’t respond quickly. It takes that long to get an answer.

      It took me 10 months to lose the Floxie feeling using the 8 hour on and 16 hours of supplements. I used 1/6 teaspoon of Borax a day. Using 1/4 should speed things up. And using oil to clear out the borax should help the supplements. So this discussion has been forward putting. We have a better protocol and maybe we are getting close to optimal.

      I am still trying different time periods of being on borax. I am having a very difficult time removing Clindamycin l took to prevent a skin infection from hand surgery. The contraindication say avoid multitvalentions. Mg seemed to help initial ally, then the borax but my blood glucose is still 30 points higher than my lowest prior numbers.

      LOL
      John Taylor

    • John Taylor January 14, 2021 at 7:11 am Reply

      Don M,
      I have been thinking further about your question and have concluded the 8 hours of Borax followed by supplements for 16 hours is a the best yet Protocol for Borax.
      1- I removed enough of the toxins that way to stop the Floxie feeling and my body experienced a rapid increase in repairs. That took 10 months with the 1/16 teaspoon daily. ¼ teaspoon daily should be faster or perhaps 2 ½ months. That should be fast enough. What would be the point of spending time on finding a faster rate?
      2- The drinking of 3 ounces of Olive oil to clear out the Borax before taking the supplements should make then more effective than what I was doing.
      3- Now you can watch how effective the supplements are and adjust the amount of Borax so things are improving. In my case I monitor blood glucose, temperature, and how many fully alert hours I get per day once I get up in the morning. The Borax drives these in the wrong direction in the short term but it does remove the toxins which drives them in the right direction in the long term. So it is a question of balance. This would be easy to adjust the daily dose of Borax to keep things improving. It is probably better for your body to have less toxic effect from the Borax before the supplements start repairs again.
      4- Once you find the steady state Borax dosage, you can look at new effects while maintaining both the Borax removal and supplement improvement without waiting for the swings from a periodic Borax multiple days usage to settle out. This is a big advantage.

      In my case I don’t think the Clindamycin I took in November is out of my system yet. None of my trend charts have returned to the pre-Clindamycin levels. The drug literature says avoid multivalent Ions so I am going to add all of them to my protocol and see what happens. It takes about 3 weeks to see an effect. With everything else stable, this speeds up my search to repair my body.

      Thanks for your help.
      John Taylor

      • Fred S January 23, 2021 at 12:35 pm Reply

        John – one question. I have seen some thoughts from doctors (and others) that the fluoride is out of your body fairly quickly and the issues we have are the aftermath of the fluoride FQ bomb (nerve damage, brittle tendons, etc). If this is the case, how does the borax make you better? Not being critical of borax – just trying to reconcile in my own mind. Also, if the fluoride is still in your body, how do measure how much you have ? Thanks

        • John Taylor January 24, 2021 at 8:49 pm

          Fred,

          They are spinning the facts. The floroquinolones are at super low concentrations in your blood fairly quickly but the are chemically bonded to the surface of your cells.After a while one molecule will leave the surface where it is attached and then attach elsewhere doing more damage. This is why you have the ongoing Floxie feeling. The Magnesium ion at high concentrations will react with the fluorine negative ion when it is,in solution and turn it into a solid or powder that passes out in your urine. When I did the magnesium ion removal, I measured the amount of increased powder. Over four days, I removed 3.5 grams, 4 months after taking 5.5 grams.

          Borox works differently. It breaks double bonds anywhere it finds them in solution or on the surface. It removes the other toxins that have buildup from our food supply over years. You became a Floxie because the total amount of the toxins exceeded an amount where the destruction exceeds the body’s ability to repair, so it is I,port at to remove all the various types of toxins. Borax basically cuts up the antibiotics into little pieces. Borax removes the pesticides, fungicides, scheme chemicals, antibiotics, et

          I don’t know how to measure the florine remaining in your system directly. When you tip the balance so the destruction is less than the rebuilding the feeling of being better is dramatic. Your fasting glucose is another indicator^. In my book I describe how to make and interpret trend charts. Antibiotics tend to raise glucose levels. When you remove them the glucose levels tend to go down but glucose is a. Very complex subject. The book has 90+ kindle pages describing how to remove the toxins and repair the damage in a sequence that our body follow. Doing things out of sequence is often ineffective. Your body will tell you how well you feel in many ways that direct you Yo,what supplementS are needed next.

          LOL
          John Taylor

  3. Tricia January 12, 2021 at 5:55 pm Reply

    A. Coleman
    I wonder how many floxies experience a flare following covid??? It would be interesting to know.
    I hope you recover quicky!

  4. Aga January 13, 2021 at 2:01 am Reply

    Hi guys,

    Happy New Year to everybody. I have a question re N-Acetylcysteine, have you tried it? What was your experience with it? Any side effects?

    Thanks,
    Aga

  5. Andrea January 13, 2021 at 4:52 am Reply

    Hi guys.
    Yesterday, after a month, I’ve checked my vitamin D and calcium blood levels again. Remember, there’re mounting studies that shows how having optimal vitamin D levels it’s protective against the virus, but of course the governments, the Italian government here in particular, keep saying there’s no proof about that. Besides, I’ve always noticed, since being floxed, how vitamin D it’s super important as far as pain menagment for me.
    So, in just a month, my levels raised from 53.3 to 70.2 ng/dl, which is good, but also the calcium increased from 10 to 10.4, wich is not good, since the upper limit is 10.6. I’m almost sure that this tremendous increase is due to the boron supplementation, which II’ve been taking for about 2/2.5 months. Boron is known to increase vitamin D serum levels and also support/regulates the mineralization of bones and cartilages. Anyway, I’ve decided to give boron a break and in another month, see what my blood results look like. I’ll keep you updated.

    To Aga, Sorry, but I’ve never took N-Acetylcysteine, so I can’t help you, but why are interested in it?

    • Aga January 13, 2021 at 8:00 am Reply

      Hi Andrea,

      I’ve recently read about NAC, it is an amino acid that apparently increases glutathione levels and therefore supports detoxification of the liver and wanted to try that.
      I know that some people take glutathione supplements, but I’ve read different opinions about that and I’m reluctant to take it. If NAC can boost the glutathione levels it could be healthier option to help the detox process. But not sure about side effects and if that actually helps.

      • Andrea January 13, 2021 at 1:34 pm Reply

        UHm…I don’t know what to suggest, Aga. What are your symptoms right now and how long have you been in this situation (floxed)?
        To me, it’s always better to stick to the essential supplements we all nedd (a good multimineral maybe once a week, it depends of course from case to case, some magnesium and, in if you don’t expose your skin to sun for at least 30 minutes a day, vitamin d+k2 for better absorbtion. Also maybe a good multivitamin, if you lack some vitamin, like for example b12 etc.).
        Taking something, just because you’ve read “it helps detoxify the liver”, to me doesn’t really mean anyhting. Of course, that’s just my opinion, but why risking to take something that can be potentially harmful. Take my case : this boron supplement did what it was supposed to do, so drammatically increasing my vitamin d levels, but at the same time, I’m now experiencing high levels of calcium, which it’s not good…

        • Aga January 19, 2021 at 3:08 am

          Hi Andrea,

          I’ve been floxed for 1 year and 3 months now. My symptoms comes and go, but the most frequent are tendons and bones pain. I take magnesium bisglycinate 100 mg 3 times a day and also use magnesium oil. I’ve recently started taking cod fish oil and vit. K2. To detox my liver I use milk thistle currently and wanted to try something else to speed that process up.
          Recently I have been diagnose with dysglycemia, likely due to Cipro as well.
          I don’t have the prediabetic profile, I’m 39 years old, my current weight is 61 kg and I’m 171 tall. I never had issues with glucose levels before taking Cipro. I’ve read some studies/hypotesis that fluoroquinolones can lead to dysglycemia due to magnesium depletion. I’ve recently had my blood tests done and despite the fact that I take 300mg of Mg daily + Mg from food sources (cacao, almonds, etc.) my magnesium levels are at the minimum levels (1.9). So not sure what else I can do to boost it up. To control glucose levels, I had to switch to low carb and no sugar diet and in three months I will have my tests repeated.
          My vit. D levels are in norm, but low as well (38.7), that’s why I’ve started with cod fish old and vit. K2. I also expose myself to sun almost every day for at least 20 min.
          Levels of calcium, iron and vit. from group B are O.K.

      • Madge Hirsch January 14, 2021 at 1:25 pm Reply

        I have taken NAC (600mg a day ) for awhile now. It is supposed to support the immune system and I haven’t had any cold or flu all the time I have been taking it. I can’t say I’ve noticed any side effects except a somewhat sulphurous odour in my urine. This comes and goes.

        • Aga January 19, 2021 at 2:44 am

          Hi Madge,

          Thank you for responding. I’ve read that recommended dose is 600 mg a day. For how long have you been taking it?

      • Madge Hirsch January 22, 2021 at 1:42 pm Reply

        I have taken it daily for about 4 years till recently. I stopped for a bit as I thought it might be making my winter hives worse. I am now going to experiment with taking it 3 times a week.

  6. David January 17, 2021 at 7:27 pm Reply

    I’m excited to hear from anyone who has any research on whether Floxies will be able to take the COVID vaccine. We have mitochondrial damage. Will this vaccine worsen our condition?

    • A.Coleman January 19, 2021 at 3:04 pm Reply

      David, I suspect that most floxies will be just fine with the COVID vaccine. I had COVID (see my post on the previous page) and recovered much like I suspect I would have without being a floxie. That recovery taxed my body’s reserves and I am in a relapse now; but I don’t think COVID directly caused that.

      While I tend to avoid the seasonal flu vaccine since I don’t feel the benefits outweigh the risk the COVID vaccine is a different situation. I am sure I have some natural immunity left for a few months, but I will be taking the COVID vaccine when it is offered. I fall in the final group in the US, so don’t anticipate getting the vaccine until June or July; so we’ll have plenty of evidentiary data before it is my turn.

      • Andrea January 19, 2021 at 3:17 pm Reply

        While we’re at it, why do you guys think certain people are more inclined to get covid and certain don’t? Is it just a matter of immune stystem or is there something else?
        What’s your opinion?

    • Marlene January 29, 2021 at 3:14 am Reply

      I am wondering about the vaccine safety for Floxies. The vaccine’s interaction with RNA makes me nervous. Does anyone have a science based response to this?

  7. John Taylor January 18, 2021 at 7:54 pm Reply

    Fred S,

    I had been feeling various improvements for 3 years. Arthritis in my left hand would come and go and I felt it was a sign of Mg level.(At first I had constant pain in both hands.) But I always felt a general malais and would be tired. sluggish during the day. Then I last that feeling and had more energy. I also noticed that repairs of all kinds of things werre going at a faster pace. It was a sharp transition.

    LOL
    John Taylor

  8. Jacob Link January 20, 2021 at 3:30 pm Reply

    I am recently floxed. I stopped taking Cipro yesterday morning after 6 days being on it. Last night my feet started tingling and my muscles became weak. Today, my knee feels like it will explode and the tingling in my legs is bothersome. I am in full panic. I read the tips, but am wondering if there is anything else I can be doing.

    • Don M January 20, 2021 at 8:14 pm Reply

      Jacob Link … Are you taking ALA (alpha lipoic acid)? It is supposed to be beneficial for nerve problems. The RALA (R-alpha lipoic acid) is better than plain ALA. Also more expensive. Are you taking magnesium? Magnesium is a muscle relaxant. Magnesium really helps with muscle problems. Topical magnesium which is magnesium chloride dissolved in distilled water rubbed on the sore muscle (muscle cramps) will help to relieve it almost immediately. Learn about magnesium by reading the book by Dr. Carolyn Dean “The Magnesium Miracle? Available at Amazon. Do you know your body’s magnesium level? The simple magnesium test only is a snapshot of the mag level in the blood at that time. Less than 2% of the body’s mag is in the blood so it is a cheap but poor method of gaging the body’s mag level, The better test is the RBC Mag test. It checks the mag level in the red blood cells. Most insurances won’t pay for it but you can order it directly from Request a test https://requestatest.com/ Cost is about $50 to $60.
      Dr. Carolyn Dean says that with the RBC blood test your mag level should be at about 6.
      Fluoroquinolones ( Cipro and others) deplete the magnesium in the body so it is important to supplement to keep the level up. Dr. Dean also says that magnesium pills are only from 4% 20% effective and getting enough by pills can cause diarrhea. She recommends liquid magnesium which she claims bypasses the digestive system so the diarrhea problem is eliminated. Some liquids are Remag, Angstrom, Good State Ionic Magnesium.
      For more information go back and read the posts by John Taylor.
      Being floxed is “NO” fun but there are things you can do to mitigate the discomfort. Just takes some reading and researching.

    • Don M January 21, 2021 at 4:46 am Reply

      Jacob Link …. Along with what I have already written look into light therapy for pain like the joints of knees. Research “Cold Laser”, and bulbs and panels that have light emitting diodes that are in the 660nm red and 850nm infrared range. Light therapy does work!!! Heating pads that are “infrared” work. Heating pads that are infrared pads are more expensive than regular ones but they work much better. Bulbs can be bought for less than $40. Panels can be bought for around $75. Hand held battery operated Cold Lasers that are effective are expensive. They run from about $900 up. The cheaper ones do not have enough power to be really effective. Avoid investing in them. Let me repeat …. Light therapy works for relieving pain!!! Light therapy does not last to long but since it is non invasive it can be repeated as often as one wishes.
      Also go to the internet and look into PEMF. Read about the Bob Beck protocol.

      Click to access beck-protocol-handbook.pdf

      I know these facts to be true because I use them daily. I have available a Cold Laser, a 660nm and 850nm bulb, a 225 LED 660nm and 850nm light panel, and an infrared heating pad. I also have a PEMF unit. I TAKE NO PAIN MEDS! When I hurt (which is most of the time) I use one or more of the gadgets to mitigate pain. Bottom line … Light therapy and PEMF work and it can be used as often as wanted because it is non invasive. Try it.

      • Don M January 22, 2021 at 7:05 am Reply

        Sorry … Sorry about how the Bob Beck Protocol posted. I really only meant for it to be the web site URL.

      • Fred S January 23, 2021 at 7:41 pm Reply

        Don – what type of cold laser therapy device do you own? Also, do you use on tendons or muscles or both? Thanks

        • Don M January 24, 2021 at 2:27 am

          Fred S … My cold laser hand held unit is made in Israel. It is called Laser TRX. https://duckduckgo.com/?q=lasertrx+pain+relief+cold+laser&t=crhs&ia=web
          Price. Check around because it can be bought for around $900. It is what they call pulsed laser. To keep the light from getting hot it pulses. I use it everywhere on my body anywhere there is pain but not on my head. Light therapy is also good for healing so I may use it on wounds too. It does improve circulation so don’t use it immediately on a wound or it will draw the blood to the wound to quick. It has an auto shutoff at 5 minutes but I may restart a couple more times. Pain relief is not long lasting but since it is non invasive it can be used again and again. It will do better than a dozen 5 minute sessions on a charge.

        • Fred S January 24, 2021 at 11:14 am

          Thanks, Don

    • Andrea January 21, 2021 at 5:17 pm Reply

      Jacob, I’m so sorry to read you’ve been recently “floxed”.
      Is there anything else you can be doing? YES, DON’T PANIC! I know it sounds stupid to you right now, but that’s the only real thing that it’s going to help you at this particular moment. Mark my words. Supplements, vitamins, minerals etc…you’ll will take them, and they will proably help you, but the first thing you have to overcome, it’s the shock of finding out what just happened to you.
      You’re dealing with a serious, difficult situation, that causes a lot of oxydative stress to your body, so adding mental stress to it, it’s just going to make things worse. So, try to be calm and rational as much as you can (I know, easier said than done).
      With this being said, and I hope I didn’t brought you down with my brutal introduction, why don’t you tell us something about you : your age, previous health situation before taking cipro, eating habits, are you a smoker or drinker etc.
      One thing I can do to you, is sharing what helped me :

      Cleaned up diet : I don’t know what you normally eat, but eating lots of fresh fruits and vegetables, preferably organic, good fats (olive oil, nuts, seeds, wild cought fish), whole grains, legumes, defenelty helped immensely in the past. Also, try to stay away from caffeinated drinks, this include coffee, tea, sodas etc. Many of us, me included, develop a sensitivity to caffeine, I don’t know the reason, but many of us find that it triggers the symptoms. So I suggest you to pass on the coffee for now. Also try to avoid sugar and junk food in general. I’ve noticed, but this is just me, that milk and dairy are no good for my symptoms too.

      Supplements : during my 4 years of being a floxie, I’ve tried at least 2 dozens of different supplements, but I’ll suggest you to stick to the basics : magnesium and trace minerals, best if ionic and in liquid form, vitamin D (to me extremely important, expecially from the sun rather than from capsules, but if there’s no sun, a vitamin d (5000 iu) + k2 supplement it’s a good compromise. B complex, some of us find great benefits from it, some don’t, expecially with B6. My suggestion is to do a blood work, checking all the vitamins and minerals, find if you’re lacking some nutrients, and then, start supplementing. Keep in mind that,normally, to see if a supplement it’s doing it’s job, you need to take it for at least 6 weeks everyday, at the right dosage : dont’ expect to see some results after 3 days or maybe a week, or if taking a too small of a dose.

      Rest/ Recovery : You’re dealing with lots of stress now, you need to rest. Try to sleep well, and many hours per night, if you can of course. This is defently going to help. Also put some ice and/or magnesium oil on the parts of your body that hurt the most.

      Physical activity : This is crucial. If resting is very important, so is being active. Try to move, as mcuh as you can, without overdoing it. Walk, do push ups, squats, yoga, stretching, whatever you’re able to do, but it’s important to keep the body moving. Cipro damges the nerves, and not using them, it’s just going to add fuel to the fire. Just try to don’t push it too far. Rememebr that your body it’s in a delicate situation now.

      There’re many many other things that a floxie can do to try to improves his/her situation : cryotherapy, light therapy, nutrients IV’s, powerful antioxidants, magnetic therapy and the list goes on and on, but as I worte earlier, I suggest you to keep it essential. remember that some supplements or therapies, can defenlty help you, but sometimes, they can even hurt you, so don’t go too crazy, trying to find the magical thing that’ll heal you right away, and keep in mind what I wrote at the beginning : DON’T PANIC, and feel free to ask for anything else you need to know.
      I hope it helped.

      • Don M January 22, 2021 at 7:00 am Reply

        Andrea …. Good information for Jacob. He has it. (FLOXED or known as Fluoroquinolone Toxicity) No amount of worry or panic will help. Everyone reacts a little different when floxed. To Jacob. Do your own research and find what works for you.

      • Jacob Link January 22, 2021 at 6:20 pm Reply

        Andrea,
        Thank you for the response. I am 3-4 days into this and deteriorating every day. The symptoms are putting my anxiety out of control. I am losing all sense of hope and can’t even look at my wife and kids. I feel like I am losing my hearing and all sense of normalcy. I am scared and have no idea how I am going to continue. I am a 32 year old male. I wouldn’t say I was healthy prior to this, as I had crippling anxiety/ health anxiety and lived under severe stress. I’m already ready to throw in the towel and fear this is only the beginning.

        • Virginia January 22, 2021 at 9:16 pm

          Jacob, I’m so sorry for what you’re going through. As a fellow floxie, I know about the fear and anxiety you’re feeling. It’s scary to see our body disintegrating. But please hang in there: you can get through this. Almost all of us eventually get better; we just don’t quite know how long it will take. Since you are young, you have a good chance of improving. Time is your friend: most people improve over time. I know this condition aggravates the anxiety you already had. Good things for anxiety include: Magnesium (which also helps FQ toxicity). Take as much as you can without diarrhea, in divided doses throughout the day (max. 200 mg at one time): Mg. Threonate crosses the blood brain barrier and especially helps anxiety. Taking it at night can help sleep. Mg Citrate and Oxide are best avoided since the first can cause diarrhea and the 2nd isn’t well absorbed. CBD/Cannabis,meditation, L-Theanine and GABA can help with anxiety. Epsom salt warm baths (with at least 2 cups of salts) are a form of magnesium and can also help with sleep and pain. Andrea’s and Don M’s advice is very good. You were very smart to stop after 6 days. I stopped after 5, and have almost completely healed from my 3 partial tendon ruptures from Cipro. One was 10 out of 10 pain at first, but is now completely better, with time and physical therapy. If you feel like you’re losing hearing (which I briefly did recently from an ear infection), try to go on steroids soon. A number of naturopathic and regular doctors told me that there’s a brief window (about 2 weeks after onset of hearing loss) for steroids to restore hearing. If you wait too long, it can be too late. I was afraid of the steroids, but with gradual ramping up, had no side effects at all and even got rid of some of my depression on them. Youth and short time of being on Cipro are on your side. Remind yourself as often as needed that you have a very good chance of recovery. Recovery can take a while, so it may not be quick, but with patience and good rest and supplements, it likely will happen. Try to find a naturopathic doctor too: they are often aware of FQ toxicity and can guide you. They can also help with anxiety in a natural way so that you don’t need benzodiazepines, hopefully. Please keep us updated. We all understand and we’re all rooting for you and want to help.

        • Don M January 23, 2021 at 12:46 am

          Jacob … I’ll second everything that Virginia is saying. Do your best to stay off the prescription stuff and try to stay with the natural supplements etc. Magnesium, magnesium, magnesium. It is depleted by Fluroquinolones and it is VERY important to get the body level back up and keep it there. Look into the liquid magnesiums. I listed the three best in previous posts. May I suggest something? Look into Aculief. https://aculief.com/ It may sound a bit silly but since it comes from the old Chinese acupressure idea it does help. It is based on the idea of pressure in the web of the hand between the thumb and finger. The LI4 of Chinese acupressure. Try it. I use it regularly. And it does help. I am past 86 now and reaching for 87. At your age things WILL get better.
          It is hell I know but stay in the game. Yes …. Contrary to what many in conventional established medicine try to BS us into thinking. Fluoroqinolone Toxicity is for real!!!

        • Andrea January 23, 2021 at 4:02 pm

          Jacob,
          please stay calm. Explain to your wife what just happened to you, many people can’t belive that just 6 pills (or even less) can give you all this, but luckly today, there’s plenty of information on the internet.
          Don’t expect to find support from the medical community, they’re the ones who put you in this situation, and, usually, they tend to not giving a damn about this problem. Because they’re ignorant or negligent, or both.
          Do what I suggested you, do a complete blood work, see if you’re missing some nutrients, and as Virginia and Don suggested, start supplementing with magnesium, I suggest you also vitamin D, because you’re probably lacking this important hormone, if you’re not exposing your bare skin to the midday sun for at least 15-30 minutes. Take K2 with it, for better absorbtion. Take care of yourself, eat well, I already suggested you what to eat: lots of organic fruits and vegetables are super important, good fats etc. Stay away from refined crap and sugar, fast foods and so on…
          Don’t give up man! And keep us updated

          Andrea.

        • Andrea January 23, 2021 at 4:09 pm

          PS best form of magnesium :

          L Threonate – as Virigina pointed out, this form crosses the blood brain barrier,

          Magnesium malate : thought to be the best for muscle cramps (I’m currently using this one)

          Magnesium oil and magnesium sulfate (also know as Epsom Salt) : these two are used topically, they say a nice worm bath with epsom salt it’s the best and most efficent way to absorb all the magnesium you need. Obviously you need to do it many times per week.

        • John Taylor January 24, 2021 at 9:07 pm

          Jacob,

          The very first thing to do is Epsom salt foots soaks. Make sure there is solid salt in the bottom of your bucket – that makes it a saturated solution. Soak a foot for 15 minutes. If you feel any discomfort, stop. Discomfort is actually a good sign that, you are doing the right thing. If it is uncomfortable it means your magnesium is low. Then wait for the discomfort to go away and soak again. This will remove the antibiotic in aboit 4 days, soaking twice a day.

          After that you start the repair work. You are lucky that you found this blog so soon – your destruction will be less than most of us have experienced.

          LOL
          John Taylor

    • Bob February 3, 2021 at 11:22 am Reply

      Sorry for the late reply. You need massive amounts of magnesium. Probably the ideal would be a magnesium IV if you could find a doctor to do it. I had a cousin that was floxed and that was the treatmentt and she is OK. My daughter also got that for another condition and it helped her greatly. I wish that is what I had done 7.5 years ago when I was floxed but I was afraid to go to the hosp. as I thought they would give me steroids. Also probiotics if you can find a good one.

  9. Don M January 21, 2021 at 4:58 am Reply

    Just a bit of information that you all may or may not know about search engines. Google tracks you. Use Google to find something and they are tracking you. Duckduckgo is a search engine that claims to NOT track you during your searches. https://duckduckgo.com

  10. Michael January 22, 2021 at 9:16 pm Reply

    Hi all,

    Can somebody give me an idea of what to expect with brain fog?

    So I’m 18 months out after 4 weeks cipro aged 42 when floxed.

    My main symptom until now has been neuropathy mainly in my feet and up to my knees at times. This is very very gradually getting better.

    I’m almost at a crossover now where brain fog is becoming my main symptom and no longer neuropathy.

    I don’t feel like I’ve lost intelligence but I do feel tired a lot, and cloudy in the head almost like a veil has come down over me. A bit like being mildly drunk only not pleasant at all. I am worst after exerting myself physically or mentally, in the afternoons or if I haven’t slept well.

    I don’t drink or smoke and functionally I am mostly where I was before floxing in terms of work and life activities. Although I do only work part time but I am lucky that I am able to. I think full time would be hard.

    What can I expect? And what is this really? Is it brain damage? Is it chemo brain? Is it Chronic Fatigue Syndrome?

    Best,

    Michael

    • John Taylor January 24, 2021 at 9:28 pm Reply

      Micheal,

      Brain fog is low fuel (glucose) in your brain cells. It is fully repairable. The quick fixes are eat a lot of oil – the brain can also run on oil. Buy a kilo of D-Ribose at Amazon. You need to find the amount you need for a day. Start with 2 teaspoons per day. And increase it by 2 teaspoons a day until the problem clears. Too much and you will be too alert to go to sleep, so take it easy. You will feel better very quickly but you don’t want to stay on D-Ribose forever. Diabetes is a catch all term for many conditions including those you list. You want to,start a fasting glucose trend chart.

      Well, this whole subject is extensive, so I wrote my findings in a kindle book available at Amazon. You can blog here and figure it out over time or you can jump start the whole process by buying the book and refer to,it as you go along. The blog has brought up many questions and suggestions so the knowledge available is growing. I think Andrea is the most cured of any of us. She has good advice so pay attention to,her thoughts especially.

      I expect you will have this under control in about a week. (It takes three days get the D-Ribose unless you find an expensive supply in a health store).

      LOL
      John Taylor
      The Healthy Truth

  11. Don M January 23, 2021 at 1:06 am Reply

    Michael……. “I don’t feel like I’ve lost intelligence but I do feel tired a lot, and cloudy in the head almost like a veil has come down over me. A bit like being mildly drunk only not pleasant at all. I am worst after exerting myself physically or mentally, in the afternoons or if I haven’t slept well”. You have described exactly the way I feel. “And what is this really? Is it brain damage? Is it chemo brain? Is it Chronic Fatigue Syndrome”? I think to some degree it is all of the things you list. Will it/does it get better/ Takes time and lots of it. I am still working at it. Discussing your problems with those that DO understand you helps. So much of the established medicine is totally ignorant and try to BS us into thinking that we are nuts .
    Hang in there. You come first. Do the things that make you feel better.

  12. John January 24, 2021 at 9:40 am Reply

    I took 7 x 500 mg pills of Cipro 4 months ago, unfortunatelly with corticosteroids (astma came up during treatment). I have serious walking issues, in one leg below the knee i feel some pain and weakness with every step. I can now walk about 30 minutes per day (it was 10). I wonder if I could do some stretches on the floor because I’m lacking flexibility. Some of you wrote it’s helpful but other say it may cause a rupture. What do you think? When it’s safe to start stretching?

    • Andrea January 24, 2021 at 12:38 pm Reply

      John,
      it’s difficult to answer to your question. Have you done a ultrasound or something else to see if there’s something going on with your tendonds? I remember when walking was very painful, I did an ultrasound on both of my acchilles tendons and nothing showed up.
      My suggestion would be to try some easy stretches, without pushing too far and see what happens. Also look into deep tissue massage. I own a foam roller and a couple of lacrosse balls, they always helped me tremenedously, and you use these kind of devices on your muscles, not on your tendons, so you should be safe, and they really work, if used correctly.
      Ice is also helpful. Look into saunas and cold showers too. Hope this helped.

      • John January 24, 2021 at 1:58 pm Reply

        Thank you Andrea for your answer. I did a ultrasound on my knees and only a torn meniscus, bad kneecap position and something about an angle (dont remember details) showed up. I think it’s not FQ related though.
        Today I started light stretches. I did not feel good afterwards but I’ll repeat it a few times before judging because the same was with walking – it still hurts after a walk but I gain strength.
        Ice was helpful in early stages, hot showers and high temperature seem to worse things up. I have some improvement in walking but it all goes very slow.
        When were you floxed?

      • John January 24, 2021 at 2:26 pm Reply

        I found in one of your above comments you’re 4 years out. Can you tell me when you physically felt acceptable?
        I do have a lacrosse ball, but haven’t used it for this purpose, no idea why – I only used it for back pain in the past. Will try it on my leg muscles.

        • Andrea January 24, 2021 at 3:44 pm

          John, as you mentioned I was “floxed” in Dec. 2016, at 30 years old. It all started with a subtle tingling sensation in one of my achilles tendon. Then it moved to the other one, and soon it was in both my lower legs, shins expecially were on fire. It remeined a burning sensation and/or an electirc shock feeling, deep in the muscles and inside the bones. Some days it was harder, some days it was lighter. I went on and off like that for about 5 or 6 months. Then, the situation precipitated and I started to feel week, dizzy, groggy and extremely fatigued basically 24/7. I was frequently out of breath, even when I was sitting on a chair. Plus of course the pain that was unbearable, not only in my legs now, but in my shoulders, wrist, elbows, basically every joint of my body. It went on like that for about 2.5/ 3 months. It was the summer of 2017, one of the hottest ever recorded here in Italy, and I’m sure this just made things way worse. At around the beginning of september, I started to “fight back”. The temperature dropped a little, so I started to eat well again, lots of fruits and vegetables, no sugar, no dairy, no refined crap or fast food, but expecially, I gave up coffee or anything with caffeine for good. This helped a lot.
          I forced myslef to move a little. I started with a brief walk almost everyday, and even if it was painful, I felt better afterwards. I even went to the gym again, of course just very light weights, some stetching etc.
          Now that I think about it, have you considered to go swimming? I don’t know the restriction laws in your country for the covid 19 pandemic, but if you can have access to a pool, it could be a good compromise if walking is still too hard for you.
          I still suggest you to look at deep tissue massage. Get yourself a good foam roller, it helped quite a bit in my case. The thing with these damn fluoroquinolones side effects, is that you really can’t control them. One day you feel almost healed and the next day you feel like a bus ran over you again.
          Try to be consistent with your “healing regimen”, but don’t push it too far, if one day you feel like you don’t want to do anything because you’re too weak, go ahead and take another rest day. Just don’t give up completely. Over time I’m almost sure you would be able to recover to a certain degree.
          Take me as an example : In 2017 I was considering killing myslef, because I was in such a terrible, desperate situation. I’m now walking 10 km uphill everyday and I’m taking cold baths in the sea almost everyday. Yeah, I’m not what I used to be, just 4 years ago, but I can still do something without too many problems.
          Oh, just another thing, I’ve recently discovered medical cannabis and my verdict is that It’s very helpful for keeping the pain at bay.

    • Don M January 24, 2021 at 4:41 pm Reply

      John … I have a PEMF minimat that I use on my legs and other places when they hurt. It is 24X16. It is called the Omni MiniMat. Pads are a bit on the expensive side but they are available on eBay
      PEMF … Pulsed Electromagnetic Field therapy,
      https://duckduckgo.com/?q=pemf+definition&t=crhs&ia=web
      30 to 45 minutes of laying my legs on the pad and they feel better. Read the Bob Beck protocol that is posted here.

      Only one web reference is allowed per post or the post goes to the checkers and may not be posted. I’ll post again about the minimat.

    • Virginia January 24, 2021 at 8:52 pm Reply

      John, you can try very cautious stretches and stop immediately if there is pain. Too vigorous exercise can cause tension ruptures for those with FQ toxicity.

    • John Taylor January 24, 2021 at 9:36 pm Reply

      John,

      Stiff muscles or short muscles are likely low magnesium. I recommend magnesium foot soaks. Older,posts,describe this in detail. Start with Epsom salts and order a bag of magnesium chloride flakes from Amazon.

      Week,tendons is another matter but you need to “top up” om magnesium first.

      LOL
      John Taylor

  13. Christopher January 24, 2021 at 11:58 pm Reply

    31/M here. Floxed on October 14, 2020. I am just under 3.5 months in, and I am not doing well.

    I was floxed for no reason, as a “precaution” by a urologist without evidence of any infection. Took 6 pills in 3 days. I got ROCKED right away, by day 3 couldn’t walk and had pain in both Achilles, shock sensations, pins and needles up and down my body, eye floaters, joint pain in my fingers, joints popping, brain fog, anxiety, depression, suicidal ideation.

    Some of that started to fade by 3-4 weeks, and I was walking around again in flip flops. Big mistake as I was doing major damage at that time.

    About 6-7 weeks ago, I started having extreme weakness in my left leg and mild weakness in my right. MRI has now confirmed tendonosis of the left peroneal tendon with a partial tear. My understanding is this is a partial rupture. I am in physical therapy (which helps when the PT does it, but hurts when I do it) and waiting to ask the orthopedic if surgery will be necessary.

    I can only walk a few hundred steps a day, maybe 1,000, before I flare for the next two days.

    I also still deal with: eye floaters, neuropathy in my hands, fatigue throughout the day, and major skin changes in my feet. Redness, peeling, and major pruning and wrinkles. I can’t even enjoy epsom salt baths, they prune within a minute so bad it looks like trench foot. I have to blowdry and moisturize them right away. I think this is from a collagen breakdown so I am taking collagen peptides and starting to eat bone broth.

    I’m having a hard time guys. I am on disability from work until March 30 over this, but if I don’t start to see major improvement in 2 months I could lose my job.

    I’ve only got 2 relatives, one is nearby but the other is 1,000 miles away.

    I have fears that this is the end of my youth and can’t help but believe I’ve been robbed of about 20 years. I sleep about 10-11 hours a day. All I will say is I can’t live like this long term. And I won’t.

    I really, really hope it’s true, the most get better…

    Supplemets: magnesium liquid, calcium with Vitamin D + ALA + Fish oil + lutein + COQ10 + collagen peptides + probiotic

    P.S. – I am fighting back against the urologist. I have complained to the Florida department of health and am working with a lawyer to see if I have a case. I’ve had two doctors, including an MD and a DPT put their names on paper to see this is Cipro toxicity

    • Virginia January 25, 2021 at 12:53 am Reply

      Christopher, I’m so sorry. I too had a partial left ankle peroneal tear which has completely healed after 4 years. Yes, most of us do recover, but it can take awhile. Physical therapy helped me too, but don’t overdo any exercises. Since you’re young and were only on it for 3 days, you have a good chance of recovery. I was older so took longer to heal. A partial tear may not need surgery: mine didn’t. Keep up the magnesium, and rub mg oil on the tear. Collagen peptides and bone broth are an excellent idea. Wear an ankle brace when walking and minimize steps for now. I still wear a wrap around brace to bed at night to keep the ankle supported. I know it’s scary right now but you will very likely improve with time.

      • Christopher January 25, 2021 at 12:06 pm Reply

        Thanks Virginia. I admit, it’s hard to push forward every day. I don’t have much of a support system. I live alone, the two relatives keeping me tethered to this world are actually not much help. I am suffering from severe depression every single day and they don’t understand the gravity of the situation.

        I can’t even seek counseling or medication in the traditional way, due to the PTSD of the medical system putting us here in the first place.

        I hope I can hold on long enough to see some gradual improvements.

        • Virginia January 25, 2021 at 5:47 pm

          I’m sorry to hear about your depression and isolation, Christopher. I too have had significant depression at times. Many supplements (I can give suggestions) and SSRIS can help with that, also counseling with someone who understands chronic illness. Those who aren’t chronically ill have a hard time understanding what you’re going through, like your relatives. That’s why support groups can be more helpful than family. It’s a tough situation, but very likely will get better. I was on Cipro for 5 days, you for only 3, so that improves your chances. Be sure your physical therapist understands FQ toxicity and isn’t too rough on the tendon which could damage it further. Remind yourself that you will very likely improve and that this won’t last forever. Patience is important in this recovery time, which can be hard. Yes, it’s natural to have anger and PTSD from the medical system that let us down. It’s outrageous you were given Cipro as a precaution! I too was given it when another drug would’ve worked just as well. Hang in there: you have youth, and shortness of time on Cipro on your side.

    • Barbara Arnold January 25, 2021 at 5:02 am Reply

      Christopher,
      Everything that Virginia said is good. I to had a tear, in a wheelchair for 3 months. I was floxed at 71 years of age, 6 years ago. I have travelled to a lot of far flung places, since. You have every chance to heal as you are young. Sleeping 10 hours a day is good, that gives your body time to heal. I had acute insomnia and it took me a long time to get back to around 7 hours a night.
      Bone broth is excellent and will help a lot.
      You need k2 with VitD for absorbtion.
      Eat clean, no processed food.
      You can buy topical magnesium oil to rub in if you can’t take the baths.
      You need high dose magnesium up to the point of lose stools then back off a bit. Magnesium Threonate is good, because it passes the blood brain barrier.
      The FDA has issued 4 BLACK BOX warnings about fluroquinolones, and they should only be used in a life or death situation. You may have a case against the idiot that gave you cipro. I truly hope so.
      You are in a marathon not a sprint, you may as you progress get flares, they pass. Stay as stress free as you can , meditate, breathe. I am 95% better and I’m now 77 years.
      Have a positive mental attitude and DON’T give up no matter how bad it MAY get. You can get there. Stay strong and when or if you need help, come back here. Plenty of good advice on this site.

      • Don M January 25, 2021 at 9:12 am Reply

        Barbara Arnold … I agree with everything that you have said on your post to Christopher. May I add something about the magnesium? Investigate liquid magnesium. Liquid magnesium bypasses the digestive system so it eliminates the “loose stool” or diarrhea problems. There is ReMag, Angstrom, Good State Ionic Magnesium (Good State is what I use) and others but make sure the liquid is in the nano or ionic form. They are quicker to be absorbed directly into the system. Do not be concerned about over use of topical magnesium (magnesium oil) If you use to much it will just not be absorbed. Magnesium oil leaves a residue on the skin. After it has dried and turned to powder just wipe it off with a wet cloth. Magnesium oil is nothing exotic. It is Magnesium Chloride dissolved in distilled water.
        I use liquid magnesium twice daily and then add two capsules of Magnesium Threonate before retiring. Also magnesium oil and especially to mitigate cramping muscles. (Charley Horses) It works in seconds.
        I am 86 now and soon be reaching for 87. When was I “officially” floxed? That is hard to determine because I was in on the clinical trials of Cipro before it came to market.
        I always knew something was not right but the doctors always had some other reason for my complaint. After an IV of Leviquin about 4 years ago things began to escalate.
        that is when I did some research myself and finally learned the truth about Fluoroquinolones. Yes…. I was one of the blind and dumb Guinea pigs.

        Dr. Carolyn Dean has written many books. One that should be purchased and read is “The Magnesium Miracle”.

        • Barbara Arnold January 25, 2021 at 9:45 am

          Thanks Don,
          Yes I have known about Dr. Carolyn Dean for quite a while. I agree to, with what you’ve said. Dr Dean’s products are great but expensive, so if you can afford them great, especially when your first floxed. You need to get as much mag in you as possible.
          You seem to be doing well, good on you. I hope you keep going well.

          I’ve been taking a powerful antioxident called C60 for the last 3 months and it seems to have helped me a lot.For the first time in years I’ve managed to walk for 40 minutes and uphill coming back. I couldn’t do this before. So hopefully I can lose some weight now and get fitter as my creatinine levels are high and I have to bring them down.

        • Bob January 25, 2021 at 8:38 pm

          Barbara, I was thinking of getting some C60. Can you tell me where you get yours? What benefits have you noticed?

      • Christopher January 25, 2021 at 8:15 pm Reply

        Hi Barbara. THANK YOU! What a beautiful story of hope and inspiration. Floxed at 71 and traveling at 77? I cannot even the imagine the grit and strength that runs through your veins.

        I have been brought to my knees, perfectly healthy at 31 and now unsure if this is the end of my life. Everything is on the line the next 6 months or so. But I get a little choked up reading your story that I too will have my redemption.

        If anyone would like to email me you can reach me at blueshirtdynasty12@gmail.com

        • Barbara Arnold January 26, 2021 at 12:23 am

          Hi Christopher,

          Your stronger than you think.

          I never realised how strong you can be until my husband got cancer during my floxie years. It was horrendous as I had to feed him liquid food through a tube in his stomache as he could not eat after neck cancer. Those were very dark days, but….
          he recovered and eats normally now, and has just had an all clear from his six monthly checkup. I was in a lot of pain during this time and didn’t know if I could cope. But I did. I did it by never giving up, taking a day at a time and believing I could get through. Of course there were times I got near to a complete breakdown, but thats when you have to dig really deep to find the strength inside you, it’s there in all of us, it’s in you. You are in the middle of a storm, but like any storm it will pass and you will come out the other side. A lot of floxies I’ve known have felt exactly like you and have come through to the other side. I have every faith you will to.
          I’ll email you soon
          Hugs,
          Barbara xx

      • Andrea January 26, 2021 at 4:30 pm Reply

        Barbara, those are some beautiful words you’re sharing with us, you’re a very strong woman, be proud of it

        • Barbara Arnold January 26, 2021 at 11:20 pm

          Thankyou Andrea, you made tears come to my eyes. xx

    • Andrea January 25, 2021 at 9:54 am Reply

      Christopher, I’m really sorry to read all this, as I’m also infuriated to keep reading that these doctors, urologist in particular, still ignore, willingly I must say, all the dangers about this kind of “medicine”. We were both poisoned for the same reason : NOTHING! I was too prescribed a FQ in a “just in case scenario”, by a urologist, even if all the tests done came out absolutly negative. I’m really happy to read you’re trying to sue this MOFO who destroyed your health like that, that’s the only thing to do, they won’t listen to us otherwise. Today there’s plenty of informations and scientific reserches to look at, for your lawyer.
      In both Europe and US these drugs have been restricted multiple times, but they don’t care.
      Now, back to your symptoms, 3.5 months it’s not a long time, in floxie terms, but I belive and hope that you’re going to improve quite a bit, most of us do.
      I completely understand your feeling of loosing hope and the loneliness…you’ve been stripped of your health, which is the only one thing you really own, but probably time would give it back to you, al least to a certain degree.
      Keep us updated and feel free to use this website to chat with the rest of us for anything that comes to your mind, don’t give up!

      • Christopher January 25, 2021 at 8:11 pm Reply

        Hi Andrea. Thank you so much for your reply. Sometimes I cry an equal amount of tears of joy when I speak to floxies who were in a much more vulnerable predicament than I. Elderly, repeatedly floxed, misdiagnosed for years.

        I choke up when I see they still recovered, and that they were willing to share that hope with me. Right nowI look forward to sleep every day, and I dread getting up. But at 3.5 months, I might just be going through the worst of this now.

        Floxies are some of the most caring, compassionate, idealistic and beautiful people I’ve ever spoken to. Thank you!

        If anyone wants to chat my email is blueshirtdynasty12@gmail.com

        • John Taylor January 26, 2021 at 1:12 am

          Christopher,

          You still can get better. There is a repair sequence to follow.

          FIRST and an absolute must is to increase your magnesium levels to,the point where you don’t have muscle cramps. Since Epsom salts soaks are too extreme (indicating severe Mg deficiency). Buy some magnesium oil and lotion on Amazon. Dean’s book will be a big help as your progress further. There are 13 Magensium salts she recommends. (I only use 5). Her products are expensive and not any more forward putting. Wipe the oil and lotion on the places that hurt the most very often. Like 6 times a day. Do this until you can tolerate foot soaks. Mg oil is Magnesium chloride. You also need Espoms salts or Mg sulphate. You can take oral MG Taurate, Glycinate, and Malate without digestive issues – diareah. If you can find a natural doctor who gives Myer’s Cocktails, do so. This is IV magnesium chloride and will bring up your magnesium quickly. All this should take no more two weeks, but you will feel better immediately. While you are waiting for the Amazon stuff to arrive, put some Epsom salt in a coke bottle and shake it up, make sure there is always some salt on the bottom. This makes a saturated solution. Wipe this where it hurts.

          SECOND is Vitamin D but wait until you don’t have muscle cramps otherwise your body will steal Mg from your muscles and drive you further downhill. When you can take Vitamin D you must take K2 for it to do any good. BUT they will consume Mg from your muscles and TENDONS. You can’t risk that now.

          Third is the tendon and cartilage growth. These require Mg and vitamin D plus other things to repair. Sorry you have to wait but you have to get past the Magnesiun deficiency first otherwise it causes more damage. When you make some progress I’ll detail this.

          I have yet to meet a non-Floxie who really understands what you are going through. I have a friend who is way overweight with severe knee pain. She believes western medicine is the way to go. She says Mg foot soaks do make her feel better but don’t have time to do that. Says it will take too long for my cartilage growing protocol to work. It takes about 6 months in her case so she has avoided it for 3 years and now is looking forward to knee surgery so she can walk again in. My point is there are more people like that than natural healers.

          The other thing you can do while waiting for the magnesium to get into your tissues is change your diet. There is a Mg “tissue” test. This indicates what the absorbed Mg level is. Blood concentration is useless. Consider you need about 3 Kilos in your tissues while the blood natural level is only 1 gram or 1/3000th of what is needed. Diet changes are time consuming but they will start to work on the fatigue.
          Eat or take About 5 once’s of oil per day, olive, Avacado, and coconut.
          Eat all the protien you want. Include oily fish – tuna, herring, salmon, sardines
          Eat high glucose fruits – dark berries. Frozen organic berries are affordable.
          Wean yourself off caffeine.
          Stop ARTIFICIAL sweeteners – Steva is OK.
          Eat most of your food in a short period of time. (intermittent daily fasting. Blog posts talk about the benefit of fasting). Snack,on these dark berries later in the day.
          Stop eating all forms of starch.
          Drink almond or coconut oil milk. These are oil emulsions. We need oil and it is an alternate fuel for the brain. This is why oils reduce fatigue.

          You can call this a liver friendly diet. What is does is take the chemical work off the liver, it will make you loose weight effortlessly, and will free up liver capacity to make the chemistry you need. Eat what you want whenever, you body is telling you it needs something. After about a week it should be asking for some starch. We need that to make methyl groups as building blocks for more complex chemistry. You are getting starch when the liver is digesting fat.

          Good luck and Lots of Love
          John Taylor – The Healthy truth

    • John Taylor February 1, 2021 at 3:07 pm Reply

      Christopher,

      You have many of the earmarks of magnesium deficiency. Your skin pruning is also sign of magnesium deficiency. Cheer up there are some you haven’t mentioned so you are so,e to,work with.

      Floxies lose Mg Nd Vitamin D extensively and these are the first two that need to be retor4d. Vitamin D is easy to acquire and it consumes Mg. Mg is hard to acquire or push I to your tissues. Your body meds about 7 pounds or 3 kilos in all aspects of your body but normally the is only 1 gram circulating in your blood. If,you temporarily raise that to 25 grams it will remove the floroquinolones. Once you can stand a saturated foot soak for 15 minutes it takes four days and the flourine antibiotics will be removed.

      You have to do everything you can to increase Mg first. Avoid Vitamin D until your muscles are not sore and stiff, it just uses up the Mg elsewhere and steals it from your muscles. Here are things you can do. Orally take Mg turtle, fly image, and malate. Rub Magesium oil and lotion everywhere you hurt especially where you feel tendinitis. Mg oil and lotion can be purchased at Amazon. Also purchase so,e MgCl flakes. Epsom salts are a milder salt compared to MgCl. Start with foot soaks of this as much as you can and remoosturis your skin. You could use a bucket of plain water for this remoosturizimg.

      Unless you get magnesium into your muscles you will be stuck,in Floxie land. I expect you can escape in about 2 weeks and then The repairs can start. However, the kidney antibiotics are not the whole story, they are just the “straw that broke the camels back.” You have antibiotics from meat especially turkey and other toxins from vegetables (roundup). I suggest you eat chicken and wide caught fish for a while. All this needs to be removed to allow repairs to proceed.

      Repairing all the damage will require additional supplements but there is a repair sequence. So start with magnesium and keep us posted.

      John Taylor
      Author of The Healthy Truth

  14. Barbara Arnold January 26, 2021 at 12:05 am Reply

    Hi Bob,

    info@telomas.com
    I get my C60 at Telomas in Ireland.

    It’s been great for me as far as energy and a sense of wellbeing is concerned. I’ve started doing walks that last 45 minutes, which I couldnt do before. I could only just manage food shopping post office etc but in short bursts.
    I buy the tiny bottle for 18 euros and I started with half a dropper morning and evening. Now I just take half a dropper in the morning. I’ve been using it for around 3 or 4 months now.
    I hope you see this as there is no reply button on your post

    • Bob February 3, 2021 at 11:13 am Reply

      Thanks Barbara. I was floxed 7.5 years ago and still have major problems with my legs and neuorpathy. I don’t get on this site much anymore as I don’t want to discourage the newbies. I have heard it said from someone that the C60 molecule is like a minature ultraviolet hexagon that will help repair your telemeres. I am definitely going to try some. I can’t afford alot of supplements anymore as I am no longer working but I want to try that. Has L ever come back on the site?.

      • Barbara Arnold February 4, 2021 at 4:32 am Reply

        Really sorry Bob, but hey, come on this site anytime. This is a site of support as well as hope. I’m 6 years in, spent a fortune. Most trouble is I’m my legs and feet like you. Take last night, kept getting
        woken up with a feeling of someone using a red hot screw driver screwing in my inside ankles. This doesn’t happen all the time, but I still sleep with my feet outside the covers. It’s the same for walking, sometimes I can’t walk over 2 kilometers others 200 yards.
        I hope you find the C60 helps with a better overall feeling and energy. I only started walking further a couple of months after taking it.
        Are you in Europe?

        • Bob February 4, 2021 at 4:54 pm

          Ohio USA, Most I can walk is 20 min on soft ground. 2 miles would be a miracle.

        • Barbara Arnold February 4, 2021 at 11:36 pm

          Bob, I just remembered there is a woman in a group called Fluroquinolone Toxicity Group on facebook called Alanna Davis Payton who cured herself from your problem. Maybe get in touch with her as she could possibly help you.

  15. Phillip January 26, 2021 at 6:56 am Reply

    What do you guys think about se.x / mastu.rbation after floxing (I was not able to use normal version of these words because of the anti-spam filter)? Is it helping or does harm? I’m asking because for floxed people every single thing makes a difference… Caffeine, milk, sugar, walking a couple of minutes longer than scheduled… Here’s why I consider se.x / mastu.rbation to be harmful:
    – Being a male, you ejac.ulate with spe.rm, which has a lot of important nutrients – like zinc, magnessium etc. You can be deficient of those and recovery could take longer. Your body also has to produce the spe.rm cells, so instead of healing tendons, muscles, nerves, it produces semen cells which are just a waste.
    – It can lead to a UTI, and possibly the need of antibiotics. I get UTI-like symptoms (burning inside urethra) about 50% of times I masturbate. It was also the reason I was put on Cipro 3 months ago – doctor suspected a UTI, without testing my blood/urine, but I think these just were nervous problems. Now I have both them and I’m severely floxed (can’t walk longer than 1 km, have pain in legs) so I’m kinda angry at se.x / mastu.rbation, but as a human I still do have these needs… I managed to suppress them for about 3 months (with few exceptions) but it’s very difficult. I tell myself I’m sick and sick people are not supposed to even think about se.x, but the recovery will probably take a year minimum if I recover at all, it’s hard to be an ascetic in every single aspect of my life.
    – Se.x releases oxitocine hormone, which causes myotonia – that’s why some experience weak legs after se.x. I don’t think it helps as floxed people already have weak legs because of FQ.
    What are your experiences? Do you think it does harm or do I exaggerate? Did you became ascetic in that matter after floxing?

    • Andrea January 26, 2021 at 4:55 pm Reply

      Philip, if you can catch a UTI so easily, I suggest you to take D- Mannose. It’s a sugar that basically makes your bladder walls more slippery, so that the germs can’t stick to it. It’s a great way to prevent the infection, but I’ve noticed, it sometimes helps to get rid of it too even if you’re already suffering. Go look it up : D Mannose.

      Now, about s.e.x, I don’t really agree with you. I think s.e.x it’s an important aspect of a healthy life and both during and afterwards it makes me feel more relaxed and happy. You know, all those endorphins released. Of course, during the worst part of this awful journey, which lasted more or less three months, it wasn’t exaclty my first thought, but now that I feel way better, i still enjoy it, like I used to before getting floxed. Actually sometimes I’ve got the impression to even need it more, probably because I need to relase all the frustration I still have from this whole situation. Oh, and I don’t really think that some minerals lost during the ejaculation would cause any serious problem. I think if you’re in the right mood, I you should just do it, like I said, it’s an important part of an healthy life.

      • Phillip January 27, 2021 at 9:11 am Reply

        Thank you Andrea for your answer and supplement recommendation. Will try it out. I also drink cranberry juice and it’s helpful for that matter, but you have to drink a lot of it to work (at least 300ml a day).
        It’s nice to hear that you don’t find s.e.x harmful. I value your opinion, but please forgive me for asking more people to share their view on that subject.
        Just an additional explanation why I dig this matter. I became suspicious about these nutrients in semen when I read it’s contents. The “western” medicine tells you s.e.x is ok and healthy and that’s the reason I don’t necessary believe it. The doctors have no point of keeping us healthy. Eastern cultures (for example in TCA) teach that s.e.x should not be practised more often than once every two weeks. Western medicine tells you everyday is fine.
        What is good for some can be harmful for others. For women it may be ok, whereas for men it can be different. Or it may cause no harm for healthy people but be exhausting for those in bad health. Studies don’t really take into account all the background. We don’t even have gender medicine yet, let alone gene medicine.
        Interesting subject is also why some people lost libido in some health conditions. Is it because the wisdom of the body? So people don’t waste the energy needed for recovery? I read many floxies lost their libido. I didn’t, but I’d like to get along as well with my body as I could.
        I think it also depends on person. For some it may be harmless, for some not. Thats why I’d love to hear more opinions of you folks (John Taylor seems to have some medical background, and actually anyone who reads it, please share your view for the greater good of the community).
        The only way to find out truth is by study. And one method of study is asking people.

    • John Taylor January 27, 2021 at 5:19 pm Reply

      Phillip,

      If you read older blog posts there are number oF Things you can do To clear infections in the UT other than take an antibiotic.
      Antibiotics have only been available in the last 70 years. What did mankind do for this problem before that. Semen needs constant removal or it becomes infected. Once in 2 weeks is courting an infection.

      LOL
      John Taylor

      • Phillip January 28, 2021 at 5:48 am Reply

        Thank you John and Andrea for you input.
        You may both have a point. It was nice to see that matter from a different angle. I think I am probably too tough with myself trying to “heal”. I just thought that as you all say about these magnessium and nutrient deficences you would recommend abstinence but if you don’t think it really matters, it calms me down.

        • Barbara Arnold January 31, 2021 at 11:20 pm

          Phillip,
          I can’t remember exactly what I put, but I agreed with Andrea and now John.
          Sp.e.rm contains all the essentials for procreation, so I certainly would not worry about keeping it. For any culture to say how often you should have s.e..x is ridiculous. There are so many variables with humans. Nature is the wise one not culture, she sets it up to keep the species going, it’s the same for all life.
          Suppressing what is perfectly natural is not good for the body, mentally or psyhically.
          In fact the opposite is far more beneficial. Relaxation, a release of feel good hormones , endorphins, which in turn is good for mental health.

      • selcem artan January 29, 2021 at 7:28 am Reply

        Philip, antibiotics are definitely sounds scarry for us floxies, but is going in alternative drugs safe on the other hand? I am not sure. We don’t know their exact impacts on body, We don’t know what exact dosages to use. I had used oregano oil for example (phytorherapy doctor gave me) and it gave me damage also, and I see many people recommend colloidal silver. Is it safe? I guess no. Overall , whatever the treatment will be done, that should be in control of some doctors, not in control of uneducated people like us.
        D-mannose is also given by urology doctors, like for people with kidney stones. I definitely recommmend you not to go through random treatments, without information of doctors.

        • Andrea January 29, 2021 at 12:03 pm

          I aggree Selcem. i’m the proof that natural approaches can be dangerous. I never had any GI problems, but after taking Saccaromyces Boulardii, I ended up with a chronic inflammation in the GI tract. I can’t digest anything properly anymore.
          But D mannose seem to be pretty safe, in my opinion, but yes, you’re right, just because something it’s “natural” ,doesn’t mean it’s safe. Good point!

  16. Marlene January 29, 2021 at 3:15 am Reply

    I am wondering about the vaccine safety for Floxies. The vaccine’s interaction with RNA makes me nervous. Does anyone have a science based response to this?

    • Don M January 29, 2021 at 6:08 am Reply

      Marlene …. I agree. The underlying problem for the long term floxie is based on DNA and mitochondria and the changes made to them by Fluoroquinolones. We are being told that this vaccine “is different”. It has an affect on the RNA. Like the science on Fluoroquinolones that has been swept under the rug because of the excellent results and big money involved. Will there be any “real and honest” science about the long term effects from the vaccines?

      • Barbara Arnold January 29, 2021 at 7:58 am Reply

        Don, Are you talking about the Pfiz. er vaccine ?? I personally wouldn’t touch it with a barge pole. Here’s why…They are in it solely for profit. As soon as they announced it, the company men made a fortune, then I found out quite a bit about Pfi.zer. They have a rap/violation sheet as long as your arm for lying, bribery, corruption. Easily googled. Their vac.ine is completely different from the Astra Ze.nica one. The way it’s made, and it has to be stored at very low temperatures. There have been quite a few reports of side effects and a Doctor in the US died after taking it. They are charginging around 13 dollars and the cost of producing it is around 2 dollars. In my opinion they are only in it for profit.
        The Astr a ze.nica one is totally different and is non profit making. It’s based on other vaccin es already proven and has been tweaked. I would take this one. I have the flu vac cine every year with no problems whatsoever. So as the Ast ra zeni.ca one has been tweaked from that I would take it. It also does not have to be stored at a ridiculous temperature like the Pfz one.
        At the moment Europe and the UK are in a big row over supplies, so I doubt I’ll be able to have it for a while anyway as I live in Spain. I’ve already informed my Doctor under no circumstances will I take the PFZ one which he seemed to accept and put a note in my records.
        This is just my opinion, and in no way advice to anyone. We all have to decide for ourselves. I do believe though, travel will be out of the question if we don’t take a vac.cine in the future.

        • Andrea January 29, 2021 at 12:10 pm

          Barbara, when you write ” travel will be out of the question if we don’t take a vac.cine in the future”, do you mean you wouldn’t risk to travel without being vaccinated first, or do you think we will not be able to travel, because they wouldn’t allow us, unless you’re vaccinated?

        • Barbara Arnold January 29, 2021 at 10:56 pm

          Hi Andrea,

          No, I would travel without a vacc.ine when things get a lot better, but I don’t think we will be allowed to enter a different country unless we have it. There is already a lot of restrictions now. You can only enter the UK now if you have had a test and when you arrive they put you in a hotel to quarentine for 2 weeks, which you have to pay for yourself. Only British citizens can enter at the moment, as far as I understand it. So in my mind if they impose restrictions like this, it’s only a step away from the vacc.ine restriction. I haven’t seen my family for over 17 months now, because of lockdowns, travel restrictions and quarentines. This is only my opinion, I would like to be prooved wrong.

        • Madge Hirsch February 1, 2021 at 3:59 pm

          Hi Barbara – I would not trust Astra Zeneca either. I was at Uni with a bloke who was doing biochemistry. After graduating he worked all his career in Pharma. In his fifties he was working for AZ and I heard from a mutual friend that he had left as he could not stand their corrupt practices any longer. I follow the blog of a French doctor Michel de Lorgeril. He is the author of the Lyon study which showed that the Mediterranean Diet was effective in preventing heart disease and has written several books about cholesterol and the bad science around it and how statins are a load of useless crap . He has recently turned his attention to vaccines and has written several short books about them. He reckons none of the covid vaccine studies are reliable and he is particularly against the AZ one .
          I think you are right about travelling. I think they will bring in some type of vaccine passport. Hw did yu get on with the kidney specialist?

        • Barbara Arnold February 2, 2021 at 6:18 am

          Hi Madge,

          Yes it’s very difficult to know what to do. I have done a lot of research and as I understand it the AstraZeneca one is completely different and it is a vaccine, whereas the Moderna and Pfizer one are gene malipulation. I’ve just posted a link to Dr. Mercolas site explaining this in detail which might help others on here.
          I really don’t want any vaccine, but realistically, I’m not going to be able to travel without it. Mind you, the way Europe has ordered the vaccine’s I probably won’t get it until summer, by which time we may have more information on Astra Zeneca. There are quite a few in the pipeline, including Novavax, which I know nothing about at the moment.
          Big Pharma is having a ball, rubbing their hands with glee at all the money to be made. However AstraZeneca is none profit so that gives me some reasurance.

          I really would like to know what ‘the mediterranean diet is that people talk about. I live in the med, and so much of the food is fried. You can go to a restaurant and not see a vegetable in site, apart from salad. You have to go out of your way to order vegetables. Olive oil, yes. So much better than all the other horrible oils on the market. Generally the Spanish unfortunately have started to eat a lot of processed crap and takeaway’s, unheared of 20 years ago when I first came here.

          I agree about cholesterol and statins, that are dished out like candy. Some people need them, like my husband who has had high blood pressure since he was 11 years old and if he stopped taking them his cholesterol goes through the roof. Mine is somewhat slightly high and of course I refused them after being floxed.

          I felt seeing the kidney specialist was a waste of time. Two young women Docs, who looked at their computer a lot, spoke to each other a lot with the odd word to me. I told them about fluroquinolone poisoning, which they didn’t really comment about, but seemed more interested in why I had pain in my legs and feet, than my high creatinine level. They tried to refer me to a vascular specialist which I refused. I went to one six years ago and he was a pig. Anyway they were six years to late. I know what the pain is, and it’s not vascular, it’s nerve.. I was told to lose weight and come back in 2 months after a different full blood and urine test. Can’t be that urgent then, can it ? I’m sick of being patronised because I’m old. I’m sick of being invisible because I’m old.
          I thought, okay I’ll try and walk a bit further. I started slowly and can now walk around 2and a half kilometers. 3 times a week. Surprised myself lol. I have to say at first it killed me, but now I feel much better and it’s getting easier. Hopefully it will help with weight loss.
          How are you recovering Madge ? I hope your doing okay.
          Sorry for the long post, but I think a lot of floxies are worried about these vaccines, so any credible information may help them.
          Take care.

    • Barbara Arnold January 29, 2021 at 8:16 am Reply

      https://articles.mercola.com/sites/articles/archive/2021/01/26/covid-vaccine-side-effects.aspx

      Marlene.

      Here’s some data from Dr. Mercola.

      Also see my post below

      • Madge Hirsch February 2, 2021 at 4:12 pm Reply

        I’m sorry your consultation was such a waste of time. We have decided not to be vaccinated for the time being . My husband received his call this week as he is over 75. I do not think it would be the AZ one anyway as I think I heard that we were not giving it to over 65s like Germany. I am very wary of any vaccines after being floxed. I had a reaction to my last tetanus shot and my flu shot in 2010 and have had 2 FQ exposures since then. We do not want to travel outside France but will have to see if other restrictions come in for the unvaccinated.
        I can walk without support now in the house , cook and even vacuum but I srill tire easily and sleep a lot. The op has definitely brought on a relapse with tendonitis and muscle spasms everywhere and even a return of sternum pain which I have not had for a long time. My right knee is not really improving much and I am worried that the cartilage is affected there and they will say it needs replaced as well as the other hip! I am hoping that it is just damage from the op ( they twist you about to dislocate the hip) and will improve. I know what you mean about being patronised by medics cos you’re old. It happened to me in the clinic. The nurse ( an arrogant male one) forgot my anticoagulant one morning and then tried to make out I had taken it and forgotten. He would not give me another and the young doctor took his side and gave me a load of guff about being on a high dose and doubling it would be dangerous. Well it’s not a high dose. It’s the bog standard dose for someone under 80 , not underweight and with normal kidney function! I’d love to be on the lower dose. Look after yourself and make sure to take vit D. I am convinced it is just as good as any of the vaccines in preventing serious covid illness and totally safe.

  17. Don M January 29, 2021 at 5:50 am Reply

    About PEMF (Pulsed Magnetic Therapy) https://www.youtube.com/watch?v=Yv2EDBkg6E4
    Yes. It ends up as a commercial for the PEMF product but the presentation does have some very interesting information.

  18. John January 29, 2021 at 6:51 am Reply

    Thanks for your story @Andrea. During your first 5 months, did you have trouble walking or did it start later? Was it bad somedays you could just walk in your apartment a few steps? What was your maximum distance in the early stages? I’m asking because 10km a day is high and I wonder where were you at start. Also when was the first time you could make 10 km? I’m trying to walk and after month of walking everyday a few steps more I could progress from 0.5 km to 2km, but now I’m again in the relapse and 1 km is max.
    The stretching did not work for me or it just overlapped with a relapse. Maybe later. But I think I should get back to it someday because flexibility reduces the chance of rupture too.
    Maybe with time all the symptoms will be lower and I’ll be able to do more things. And also the change of rupture will be less.

    @John Taylor
    I do take magnessium lactate 250mg ions per day (100, 50, 100). I read that lactate and citrate are good forms and only oxide should be avoid. I don’t have cramps but during a relapse or after exercise my muscles/tendons sometimes pulse. Also, big amounts of magnessium dont give me loose stools but the opposite – constipation and that’s why I don’t take more. Bought magnessium chloride oil and put on my legs yesterday.

    • John January 29, 2021 at 7:09 am Reply

      Also John Taylor, you said that you remove toxins by borax. What do you think of Clinoptilolite ? I took it some time ago. Would it help?

      • John Taylor February 3, 2021 at 10:11 pm Reply

        Hi John,

        Thanks for asking about Clinoptilolite. New to me so I read about it and thought for while about the chemistry.

        It is a mineral that attracts positive ions. I stays in your digestive tract and purifies or removes toxic heavy metals – Aluminum, methyl Mercury are two,important ones they are included in the CV19 vaccines. I watched a news reported grill a rep,from Pfizer about Al and Mg being in their CV19 vaccine.The rep refused to answer the question repeatedly. He would pause as if recalling the script that was approved and the public. He Repeated the exact same sentence about 20 times. “We generally don’t use those metals in vaccines anymore” Both are antiviral and boost vaccine performance. After one takes any of these vaccines it would be nest to take Clinpptilote a week or two later.

        I take zinc and L-Lysine wherever I feel,funny and have not had the flu or a common cold for 40 years. But I need to take the vaccine for business reasons as plants are starting to require this for access. I need a certificate. I am worried about it with my Floxie weakened physiology.

        The intestines draw water in in the small intestines and return it to,the blood stream. We cycle the full blood water content about 10 times a day, so anything that attaches to it’s surface is removed from the blood.this would be safer than the chelation therapy one would get from an MD. That make a mucus that is expelled through the bronchials. I know a machinist who died from this removal because it came out faster than he could cough it up. Clinoptilolite will not do that.

        I feel, without much chemical theory support,that Clinoptilolite would very slowly remove antibiotics. It is a clay. Clay has both positive and negative charges and lots of stuff like bacteria and virus (organic compounds) stick to it’s surface. The problem is it only can remove what is in the blood stream while borax will attach the antibiotics right on the surface of you cells. To give a comparison, I took Clindamycin on 11/24 and 10 weeks later borax reduce the Clindamycin was not damaging me faster that I could repairs. Clinptilotite would probably take a year. I was down for the 8 count at the end of January and wondering what would have to occur for me t quite and go into hospice. I was sleeping 14 hours a day at that point and was exhausted but just able to take care of myself. So we need something quicker to remove these antibiotics.

        The ads for Clinoptilolite are so enthusiastic and make such broad claims at I will run an evaluation when I stabilize from the last change.

        In summary, Clinoptilolite is not likely a improvement over Borax, it is a general tonic as it removes heavy metals, and is a good agent to overcome the toxic effects of vaccines.

        Finally we give a vaccine to babies now at birth that causes 25% to become autistic. This would be a remedy.

        Thanks again

        John Taylor

    • Andrea January 29, 2021 at 12:20 pm Reply

      John, right after I was poisoned or right after I poisoned myslef, depending on how you look at it, it was very painful to walk. Even just standing was painful. I’d say I could walk, stay in line at the supermarket etc for about 10-20 minutes. After that, the pain really increased and I had to sit or lay down for a while. Even today, if I push too hard, or even out the blue, I sometimes feel some pain. Nothing compared to what it used to be, but still boring. I know it sucks, but don’t give up. Do a little everyday. Recovery in this situation it’s not a straight line, there’re days when you feel good, almost healed, and days where you feel bad again, but I belive that, with time, you would be able to do most of the things you were able to do before all this madness started. Just rememebr, DON’T GIVE UP!

      • John January 29, 2021 at 12:30 pm Reply

        Thank you Andrea for all your answers! Only one question, when did you make it 10km a day first time? Or just thought “oh, I feel much better”? I know for everyone it’s different but was it 1 year, 2 years or 3 after floxing?
        BTW. You’re from Italy. Is Andrea a male or female name? Sorry for asking but I’m not even a native English speaker and I thought it was male but Wikipedia says it’s female and male is AndreaS.

        • Andrea January 29, 2021 at 4:26 pm

          John, I’m a man. You’re right, in Italy Andrea is a male name, I belive the only other country which use this name for males is Albania, anyway…

          I’m trying to recall all my journey, to try to answer your question, let’s see :
          Before getting floxed, I was very athletic, training with weights 4-5 times a week. I used to run too, but at that time I was mostly lifting weights and running from time to time.
          Right after being floxed, I stopped with any kind of training for a couple of months. Then I started again, but now, with all this pain, it was very difficult. So I wasn’t training very consistently. I was trying to do stretching and deep tissue massage with my foam roller almost everyday though. I think it helped to keep my muscle a little bit flexible. After about other 3-4 months in this situation, so only pain, mostlry in the lower legs, all the floxie symptoms exploded. It was just horrific : the pain increased in most of my joints, and also all the CNS symptoms were in full bloom, so I was mostly laying in bad or on the couch for about 2.5 or 3 months. It was summer 2017. It was mad hot. The only moment where I did somehting, was at night. I used to walk, slowly, around my neighborhood, trying to move a little, when the temperature was acceptable. In september, I “fought back”, I completely cleaned up my diet, avoided caffeine and since this was working, I started to do a little physical activity again, maybe a small walk today, visited the gym tomorrow for a light workout etc. In a couple of months I was getting way better, but the pain in my lower legs was stil pretty strong and persistent, so it was difficult for me to really gain strenght or endurance back. It has been a slow process, but during this 4 years I defently saw major improvments. I started running again, maybe 2-3 times a week, only on the running track, I belive in 2018-’19. So I was already doing good back then, but after I ran for a couple of days in a row, I have to stop for at least other 2-3 days. So even at that time, I wasn’t consistent with it.

          I started this 10+ km a day regimen (sometimes I walked 12-16-20 km), after the lockdown in Italy ended (so in May 2020), because after all this time segregated at home in quarantine, I really wasn’t enjoying staying inside a gym anymore. So I started walking instead. I started with 3-4 km, then they soon became 8-10 and so on.
          I usually walk uphill, near the sea. I walk fast with no pauses. The view is wonderfull, the road is steep and challenging and after the walk, I take a cold bath in the sea, and that’s great for the mind and the body. I stay in the water for about 10-15 minutes, depending on I I feel that day. The water temperature here is between 13-15 degrees celsius, or 55-59 fahrenheit, so it’s pretty cool, but not freezing cold. It’s still very challenging though. Just like taking cold showers, which I started to take about a year ago.
          I hope this helped,
          PS Since you’re not from an english speaking country, where’re you from?

      • John January 31, 2021 at 4:36 pm Reply

        Andrea,
        I’m from Poland. Your name is only male here and it spells Andrzej.
        There are quite a few floxed people in our country because FQs do not even have a black box warning. And doctors are denying that side effects are because of this drug. Shortly after floxing 4.5 months ago, I contacted a rheumatologist, an orthopedic and a neurologist, and they suspected various conditions and made a lot of tests on me (blood, ENG, USG) which weren’t necessary as they came out good but they couldn’t answer one question: why all my symptoms (leg pain, weakness, ear pain, hair loss) began during a 3-day treatment of ciprofloxacin. I knew that but there was no doctor to even confirm this or help me with that. My big mistake was to take a steroid during treatment but what could I do if that FQ shit gave me asthma.
        The legs are a big problem: muscles/tendons around the knee hurt and feel weak and strange. If I do just a one squat, there became super tight and hurt. In one knee, the muscle/tendon on the external side of the knee leaps/skips (don’t know correct word) when I’m bending the knee but the ultrasound didn’t show anything… I hope it all resolves by itself.
        Walking is very strange with these legs. In the beginning, they hurt even when I was sitting, but fortunately now they hurt only when I move. Each step is difficult, there were days I could barely lift my foot over the doorstep. I have some better days but it so f… far from the normal… I feel so old despite being ~28 that sometimes I’m not sure if it’s permanent. The only thing I can do is to take magnessium and collagen and similar stuff and force myself to walk ~30 minutes days when I feel acceptable. I really dream that someday I could do simple things: walk without thinking about it, squat if I need to pick something from the floor, not sit on the ground.
        I’m so happy that you and others recovered, it gives me hope.

        • Andrea January 31, 2021 at 5:45 pm

          John, I’ve tried to post a link to you, regarding the restriction that the EMA put on this drugs, following an hearing in 2018. So I think you’re wrong when you say that in Poland there’s no black box warning for this antibiotics : all European doctors and pharmacists should now know to not prescribe this s**t for minor or uncomplicated infections anymore. I know this is not my business, but I encourage you to contact a lawyer and see if there’s something you can do to sue this imbecile who poisoned you. I can’t send you the link because this website seems to have a problem with posting links or using certain words. I urge the moderator in of this website to fix this problem as soon as possible.
          Anyway, just google EMA fluoroquinolones restriction letter. You’ll find what I’m talking about.

      • John January 31, 2021 at 6:36 pm Reply

        Andrea, there is an info about side effects in the leaflet but there isn’t any black rectangle or anything with bigger letters etc. Doctor’s fault was obvious because he prescribed it without doing any tests on me – he said to test blood and urine after the antibiotic. The rheumatologist who knew about side effects of this drug said there’s no way I can prove it’s because of that and I also can’t prove my symptoms (there is no rupture etc). The neurologists said it’s sommatisation without testing me – she was a friend of the doctor who gave me FQ. I mean all these doctors are covering their asses, protecting their colleagues. They’ll make me look like a mental person in the court. Also I took the steroid during FQ so it’s partially my fault so I believe my winning chances are near zero and suing someone is not only costly but it’s stressful and stressing about that is last thing I want to do. I want to recover now.

        • Andrea February 1, 2021 at 4:19 am

          John, that’s the same thing a couple of lawyers told me when I went talk to them : “you can’t prove your symptoms, so there’s no chance of you winning in a trial”. But just recently I spoke to another lawyer, she’s part of a team of lawyers who just follow cases like ours. Remember, not all lawyers are specialized in the same field. My suggestion is, to still try to find the right lawyer for your case. It doesn’t matter if there’s no warning sign on the box. The EMA in 2018 after an hearing (I was part of that) sent a letter to all the European doctors and pharmacies. I repeat : doctors CAN’T prescribe this crap so freely since 2018. If they do, that’s malpractice. Did you find the EMA letter I told you about? Even if you don’t want to sue anyone, just print that warning, and send it to the dumb f***s that told you you’re overreacting or stuff like that. That’s a PROOF fluoroquinolones cause permanent and disabling side effects. I wanted to send you the link, but evidently this website doesn’t allow it anymore. And I’m highly pi**ed off about it.
          I repeat, just google “EMA hearing fluoroquinolones”.
          Anyway, I completely understand when you say you just want to recover, and I apologise if I’m insisting so much. But I believe sueying this motherf*****s it’s the only way they’d start listening to us.

        • Barbara Arnold February 1, 2021 at 6:51 am

          Andrea,

          I wish they had a ‘like’ button on here. Lol

        • Jason Sousa February 1, 2021 at 1:01 pm

          We will have that feature in the website redesign. Great suggestion.

        • Andrea February 1, 2021 at 6:59 am

          You know Barbara, I often thought the same thing myself. This website it’s great, but I think it needs soem sort of “renovation” here and there. LOL

    • John Taylor February 1, 2021 at 3:38 pm Reply

      John,

      250 Mg of Mg is way less than you need. A normal,body adsorbs 500 Mg into its tissues and loses 500 Mg through the Urine daily. I am maintaining my Mg levels now with MG taurate, glycimate, and malate daily along with foot soaks of MG sulphate Mg chloride every few days 2-3 times a week now. When I realized I was low in MgCl it took my 6 months to bring the level up to the point where I could take,Vitamin D again. I did daily foot soaks for 2 hours for months.

      John Taylor

      • John February 2, 2021 at 11:35 am Reply

        How much ions in mgs do you take orally daily then?
        Do you also take potassium as a supplement? Or calcium?
        As Andrea said in one post, too much of a one thing can mess other things in you body as they’re connected. I’m worried about taking high amounts when my blood levels seem to be ok.
        I’m rubbing my legs twice a day with magnessium oil by the way. But it’s only one week now.

  19. A.Coleman January 29, 2021 at 9:59 am Reply

    Hey gang; my unfortunate relapse continues. I was getting really close to being normal; but had a bad relapse. Neuropathy got much worse as I shared in an earlier post but now a symptom that had been gone for 3 years returned.

    I have this horrible ache in the back of my left leg ONLY from upper calf through to the thigh. This is something I dealt with the first 18 to 24 months of being a floxie but it has been gone forever only to return.

    Any ideas ??? That is what is so horrible about FQ toxicity. You think you have something beat only for it to reoccur. I am guessing that as my body heals my use of Mg has increased and now I am probably showing some symptoms of low levels. I have already added a second Epsom Salt bath to make it twice a week and have also added an extra 100mg Mg (oral). I take a total of 200mg Mg glycinate and 120mg Mg threonate daily.

    I also got a bit lax on my Vitamin D over the summer, but when my levels were last taken – around a year ago I had 54ng/ul and got lots of sun this summer since there wasn’t much to do but lounge in the back yard on summer days. I have increased my supplementation of Vitamin D to 4000 IU daily – at least for the next few months too.

    Other suggestions or thoughts are appreciated – or do I just have to wait it out?

    • Andrea January 29, 2021 at 12:26 pm Reply

      A. Coleman, your vitamin D supplementation dose it’s perfect. Not too much, not too little. That’s the right spot. Just check your calcium too, when checking your vitamin d levels. Sometimes, too much vitamin d, can cause hypercalcemia.
      About the magnesium, I think you’re getting plenty of it, from the baths and from the supplements, but be carefull to not getting too much of it. To me magnesium has always been a tricky supplement to take. Sometimes it helped, soemtimes it made me feel worse.
      And remember that too muh of a single mineral, can mess with the balance of the other ones. Stay strong.

      • Tuula February 3, 2021 at 8:25 am Reply

        Hi Andrea,

        Have you or anyone else used a homeopath? Which remedies did you try, and with what type of successes/failures? Any thoughts? It seems there hasn’t been much discussion on Floxie Hope in this regard?

        For 4.5 years every time I try something that is suppose to maybe help it seriously backfires, as of late, back in Nov/Dec magnesium supplementation (caused bruising, severe muscle pain) and borax 3/4 tsp in total (still headaches, messed up brain, cracking knees (like dry twigs, really scary), gut shut down (also scary) and such a severe back spasm was bedridden (first ever back spasm was while taking macrobid, had again in 2019, now this), also changes in blood work never seen in 4.5 years, etc.). Since we are trying to help each other I want to kindly inform others that in my case mag supplements and borax have caused more problems. I wish I could say different. I am deep in a toxic, tangled mess. I still haven’t lost hope… but my GI and urinary systems, brain, and liver are taking more of a hit now in addition to my ongoing horrible neuropathy, etc. There are indications that homeopathy might be a key in my situation. I’ve seen numerous specialists, 4 naturopaths, tried all sorts of supplements/herbs, did much testing, etc. in the end everything only resulted in more problems. I’ll have a crazy story/novel when I get over this.

    • John Taylor February 1, 2021 at 3:45 pm Reply

      A. Coleman,

      Your magnesium uptake is way less than it needs to be to,recover. Saturated foot soaks (excess salt on the bottom of a bucket) give you 10 to,es what you can the from a bath. You can tolerate 1 gram of MG orally if you use the slats mentioned above.

      LOL
      John Taylor

    • Madge Hirsch February 2, 2021 at 4:45 pm Reply

      I know how you feel! My hip op seems to have brought on a bad relapse and I have had a return of sternum pain and muscle spasms in the chest that I have not had for over 2 years now. Also nausea and generally feeling crap. It really is a bummer but nothing to do but wait it out and hope it improves soon. Winter does not help and this one has been very wet and gloomy . Hope you start to move out of the relapse soon. FQ toxicity really sucks !

    • Michael February 5, 2021 at 5:53 pm Reply

      A. Coleman

      When I got floxed 18 months ago I had a severe tearing pain in my left leg basically all through my calf

      It felt literally like someone had taken a steak knife into my calf and cut through it…

      It eventually went away probably 12 months later

      I came to the conclusion that it was probably a neuropathic symptom. Just because it was consistent with the fact that overall I had more neuropathy than anything else.

      I am now pretty confident that my last flare in October was B6 related. Have you checked your levels? I have basically stopped all my supplements and my neuropathy has gradually improved more and more since last October.

      I do have the brain fog issue still. 8am to noon I’m OK. Then I’m something like the walking dead until around 5-6pm and I kind of feel better again.

      I’m switching my work schedule around so I do most of my work in the mornings and come home for a rest in the afternoon when I might lay down and have a nap for half an hour and that freshens me up a bit.

  20. Barbara Arnold January 29, 2021 at 11:04 pm Reply

    By the way guys. I replyed to Phillip but was censored. The only reason I can think of is I used the word s.e.x without the fullstops. There was nothing in my post that warrented censorship. There’s a lot of censorship around at the moment which really pe.es me off.

    • Don M January 29, 2021 at 11:44 pm Reply

      Barbara Arnold … Don’t put more than one link in a post or it goes to the checker thing and most likely will be cancelled. The whole thing is getting to be ridiculous. And most likely it is just getting started and will be picking up steam.

      • Barbara Arnold January 29, 2021 at 11:48 pm Reply

        Thanks Don, but I didn’t put a link in my answer to Phillip. Which is more worrying.

        • Phillip January 30, 2021 at 6:03 am

          It was probably the use of word s.e.x without stops. The spam filters catch it because there is a lot of spam about this matter and the moderator does not seem to verify anything, they just reject. I’m interested in your opinion though. I don’t ask you to write it all again because it would be a waste of your time, but maybe just an overview in a few sentences would be nice.

    • Andrea January 30, 2021 at 12:22 pm Reply

      I agree with you, Barbara. I take this opportunity to report this to the new moderator of Floxie Hope, if there’s something he could do about it.

  21. Don M January 31, 2021 at 8:25 am Reply

    Got peripheral neuropathy? Feet hurt? Must take pain killers to tolerate the neuropathy? Many floxies do have neuropathy in their feet. Have you investigated this? https://www.ebay.com/itm/45W-Therapy-Light-Panel-225LED-Red-Near-Infrared-AntiAging-Body-Skin-Pain-Relief/193821526660?hash=item2d20a9ca84:g:t7cAAOSw83FfhkRh
    It works to alleviate painful neuropathy in feet. It does not last a long time but since it is not a drug it can be used as often as you want. I do not take pain killing drugs but I use this light panel when ever I need it. Investigate it. Try it.

  22. Andrea February 1, 2021 at 7:22 am Reply

    I’ve got a request y’all, and I hope everybody it’s going to follow me :

    Recently, some of us, me included, have noticed how this website isn’t allowing the posting of links (any kind of link) anymore and even certain words (not even bad words eg s.e.x) are automatically censored. This doesn’t help the communication between users at all and we’re missing the opportunity to share important informations.
    I invite all the users of this great website to send a message, even right here on this board, to the manager and ask him to please fix this problem. C’mon everybody, let him hear us. Of course I’ll be the frist, so

    Dear Mr Jason Sousa,
    since you’ve accepted to become Lisa’s successor in the administration of this great website, I kindly invite you, to please fix the problems I pointed out above, or at least let us know why they’re happening, and see if there’s something we can do to help you fix them.
    Thank you,

    Andrea.

    • Barbara Arnold February 1, 2021 at 7:49 am Reply

      I would like to reiterate what Andrea has said. The monitoring on here is ridiculous. It needs sorting. Thanks, Barbara

      • Jason Sousa February 1, 2021 at 1:06 pm Reply

        Hey Barbara, At the moment nothing has changed to the floxiehope comment monitoring system (WordPress Jetpack). Lisa and I have not changed anything to the site comments or discussion. I would be happy to direct you to their help guide or show you our backend settings.

    • Barbara Arnold February 1, 2021 at 7:51 am Reply

      I would like to reiterate what Andrea has said. The monitoring on here is ridiculous, and inhibits good information for floxies. Can you please look into it. Thanks

    • John February 1, 2021 at 9:21 am Reply

      +1
      Totally agree and hope the administrator/moderator will do something to allow us communicate without obstacles.
      Thanks in advance
      John

      • Jason Sousa February 1, 2021 at 1:07 pm Reply

        Hey John, Lisa and I have not changed any settings I am aware of. I will look into this further.

    • Jason Sousa February 1, 2021 at 12:59 pm Reply

      Hello Andrea, myself or Lisa have not changed anything to the website as far as comments, approvals or moderation. I am quite unclear where you are seeing this issue. I would be happy to screen share our access to the site to prove there is not such actions being taken on the site. You can kindly contact me through the site so we can set up a time for you to see the website. Floxiehope will always be a free and open-source to floxies.

    • Jason Sousa February 1, 2021 at 1:04 pm Reply

      Also, I am unclear if WordPress (what floxiehope is built on) monitors certain fowl language or hate speechh and censors it automatically. However, as I am new to the site I may have to look into this. Let me reach out to Lisa and ask her thoughts on that as well.

      • Andrea February 1, 2021 at 2:24 pm Reply

        Thanks Jason for your quick response.
        The problems me and other users are experiencing lately are basically the two I have mentioned above. I’ll try to explain myself better, but keep in mind I’m Italian, so my English isn’t that good and sometimes I can’t express myself properly.
        1. Most of the times, when I try to post a comment conteining a link in it, the comment either doesn’t show up, or it says that it’s awaiting moderation, but finally it never shows up anyway. This happened before, but usually only when someone was trying to post spamming material or 2 links at the same time. But in this last case, after maybe 1 day, the comment would finally appear.
        2. Many of us are experiencing problems whenever they use certain words. Of course I understand that some programs don’t allow certain words by default, but “s.e.x” wasn’t one of them before, and it certainly shouldn’t be. By the way, did you see what I’ve done? I wrote that word in that way, otherwise my comment would have been censored.
        That’s all basically.
        Thank you for your support, and let us know if you could find the reason behind these problems.

        Andrea

  23. Barbara Arnold February 2, 2021 at 5:35 am Reply

    https://everlast.mercolamarket.com/r/?id=h4008bb2d,25cd5776,25cd577f&mid=DM792926&rid=1074314029&p1=1252793b403dd3a7cd1da6fd62215de3ffb02feef239fa70b91667f8305b9c3d

    Here’s some good information on the Moderna and Pfizer vaccine/gene therapy.
    This is why I wouldn’t touch it.

    • John February 2, 2021 at 2:09 pm Reply

      Thank you Barbara.
      My allergy doctor said that some of her patients receiving the vaccine described their state as “nearly-dying”, but only for a day or two. I’m not a anti-vaccine person in any way, but this particular vaccine was developed too quickly to be side-effects free. Not only for floxies.
      However, I’m not into getting the coronavirus either. It’s not good for people with asthma, so I’m super cautious right now and I WILL take the vaccine. I hope it will be the AstraZeneca one.
      As far as my asthma is concerned… I’ve been recently floxed and I fear of summertime (pollen allergy) – sometimes I took the steroid when I suffocated because of the constricted airways. But floxed people say that steroids make them feel much worse. It will be a hard choice.

      • Andrea February 2, 2021 at 3:27 pm Reply

        John maybe you could try something more easy on your body than a steroid. Steroid are known to be terrible for floxies. Many of us experienced bad reaction after taking them.
        Here on Floxie Hope there was a dear fellow floxie, her name is Lisa. She used to post a lot of interesting comments, and she suffered from asthma too,she also suffered a lot of serious breathing problems after being floxed. Too bad she took a break form this website, otherwise you could ask her what she uses to treat her breahting problems (including asthma). Maybe if you go way back in the comment section, you could find some of her previous comment on the topic. Her name was Lisa but her “avatar” was just L.
        Now that I think about it, does anyone have any news about L? I miss her and I hope everything’s fine with her.

      • Madge Hirsch February 2, 2021 at 5:02 pm Reply

        There have been studies from many different countries that show quite clearly that having a good level of vit D ( over 30ng/mL) helps to protect against a bad covid outcome. There is even some data showing that a high level stoos you catching it in the first place. There has been a trial of Calcifediol (a vit D metabolite – what our livers produce after the hydroxylation of cholecalciferol ) at Reina Sofia hospital in Cordoba where they used Calcifediol on covid pneumonia patients with amazing results. Some people have tried to cast aspersions on this trial but it has been minutely reviewed by a team from MIT who concluded that it was highly unlikely that the results werre due to chance. Why is this not being shouted from the rooftops? Because vit D is cheap and easily available and safe and more importantly there is no dosh in it for Big Pharma. It is very important for us floxies to make sure we are not vit D deficient. If taking vit D you nay need to take more magnesium as the two work in tandem.

        • John February 2, 2021 at 5:35 pm

          That’s right, Madge. Also, Zinc helps against Covid. In my country, Poland, it’s not a secret knowledge – there were articles in the newspapers about VitD and Zinc and actually people went mad buying these – it was difficult and expensive to get them.
          The proposed solution was to use 4000 IU of VitD everyday and up to 10000 IU when you start having covid symptoms. I’m not sure about zinc but I take 15mg per day.

        • John February 2, 2021 at 5:43 pm

          If Vitamin D + zinc is enough to beat covid – I don’t know. Maybe it is, but who is to tell?
          The same goes to CBD in various diseases treatment – it works, everyone knows, but doctor won’t even suggest it to you.
          Now it’s a great war against anti-vaccine people or even naturotherapy as main therapy, and sometimes I feared just saying about side-effects because they will jump on you. I also believed in big pharma until I was floxed.

        • Andrea February 2, 2021 at 5:48 pm

          I belive the thing about vitamin d being so effective on covid treatment/prevention, it’s because vitamin d is really an hormone and adequate levels of it, strenghten the immune system

    • Don M February 3, 2021 at 6:04 am Reply

      Barbara Arnold …….. Thank you for posting the link to the Mercola article. It is discussing things that are never brought up by the media or the medical establishment.

      • Barbara Arnold February 3, 2021 at 8:54 am Reply

        Your welcome Don.
        I find his site very good for fact checked information. He also has really good health information.

  24. Andrea February 2, 2021 at 3:16 pm Reply

    Guys, about this covid vaccine : at least here in Italy, I don’t know the rest of the world, there’re certain people who, at least theorically, have a pass to don’t get vaccinated without facing any repercussion, and these are the people who have known history of allergies and stuff like that. Me, as a floxie, I’m even allergic to caffeine! I remember a couple of years ago, maybe even more, I tried to drink a small amount of coffee and it knocked me down for about 24 hours. Not to mention floxies are known to react badly to NSAIDs and cortisone.
    Me personally, I’m not against vaccines, but there’s no way I’m going to take the chance to get into a relapse because of a damn vaccine that was created in just one year. Plus all the covid situation is still very very suspicious to me. There’re too many things that aren’t right in my opinion, and defently too many interest around it.

    PS, to Barbara, my mother got vaccinated and she took the Pfaizer one. No side effects for now. Of course she now have to take the second shot. After reading your comment about the Pfzier and the Astra Zeneca vaccine, I told her why she didn’t took the AZ one, and she told me that the PZ was more effective. Oh well, she’s a doctor, what can I say…

  25. Andrea February 2, 2021 at 3:33 pm Reply

    John, I found this about asthma :
    https://www.webmd.com/asthma/asthma-treatments

    Take a look especially at cromolyn, they say it’s a non steroid medicine, but of course this doesn’t mean it’s not side effect free, expecially for us

    • John February 2, 2021 at 4:08 pm Reply

      Thank you Andrea! You’ve been really helpful! I’ve also searched Floxiehope with Google and found some Lisa’s posts. She mentioned H202 IVs (to be honest I’m a bit afraid of any IVs), and someone else mentioned NAC. But this Cromolyn seems to be what I’m looking for – it’s an inhaler so it works locally. Thank you.

      • Andrea February 2, 2021 at 5:46 pm Reply

        You’re welocme John, but I know nothing about cromolyn. I’ve just found this article and posted it to you. But be careful whenever trying something new, either it is a pharmaceutical drug or a supplement, just be careful and do your homework before taking anything. Like I said I’ve just googled non steroid asthma treatment and that page popped out. Anyway this doesn’t mean it is side effect free.

        • John February 3, 2021 at 5:00 am

          Thats right. Thats why its best to stick to the basics. And the reason I dont trust IVs – injecting high amount of anything, even VitC directly to your blood seems dangerous for me. We’re not made to bypass digestive system. If we do it, we must be absolutely sure to know what we do.
          Also, supplements and drugs carry some risk, but I don’t think there’s anything worse in the world than FQs. When I told the neurologist that people are in the wheelchair after few pills of that poison, she said it’s impossible. When I tell my friends I can’t meet them for a walk because 5 months ago I took 7 pills they think I’m lying.

  26. Andrea February 3, 2021 at 2:11 pm Reply

    John I suggest you to print a copy of this letter and slam it in the face of that neurologist.
    This kind of attitude is not acceptable anymore!

    Click to access quinolone-fluoroquinolone-article-31-referral-disabling-potentially-permanent-side-effects-lead_en.pdf

    • John February 3, 2021 at 3:01 pm Reply

      Yes I’m preparing a copy to carry with me because their ignorance makes me sick.
      BTW Andrea how much magnessium did you take daily?

      • Don M February 3, 2021 at 6:20 pm Reply

        John … John Taylor has written a book ” The Heathy Truth”. Yes it is the same John Taylor that posts here. The book is on Amazon Kindle. It costs about $10 to buy it. Once you buy it you can go to Kindle and refer to it any time. It has a lot of good information about how to take the supplements, how much to take and in what order they are most effective. It has a chapter on Magnesium and the 5 different ones he recommends and where each is the most effective. Look into it.
        Dr. Carolyn Dean who has written many books has one called “The Magnesium Miracle” It is also on Kindle @ $9.99.

        • John February 4, 2021 at 1:40 am

          Don,
          This book is I believe John’s Taylor personal approach. It may be best for him, but is it the best for everyone? I ask different people to know their way and on that basis (but not only!) I decide what seems to be reasonable.
          In this post, I’d like to ask Andrea, what his dosage was. That’s all.

        • Don M February 4, 2021 at 8:10 am

          John … My point was that there are multiple kinds of magnesium. Each works best in a certain area of the body. https://www.phlabs.com/11-types-of-magnesium-you-should-know-about

          Dr. Dean in her book says that there are 14 different kinds.
          Are you choosing the right one?

      • Andrea February 4, 2021 at 3:00 pm Reply

        John,
        I currently take just a measuring spoon of magnesium malate, the one that I found in the container. Not even everyday to be honest, and I take it because it’s reccomended if you supplement with vitamin D. Same goes for K2.
        So, I currently take : 5000 iu of vitamin D, 200 mcg of K2 (K2 is very important for the absorbtion of Vit D and to get it in the right places, so in the bones and not in the artheries) and a little bit of magnesium. That’s it.
        I stress so much about vitamin D, which is actually an hormone your skin produces while exposed to the sun, because, first I’ve noticed how important it’s for my pain and second because it’s one of the few nutrients you just can’t get in sufficient amounts by diet, so it makes sense to me to supplement with it.
        In the sumemtime, I try to expose myself almost everyday for about 15-30 minutes between 11:00 and 15:00 o’clock, and I never take vitamin D and K2 during that time of the year and I sometimes take a liquid multimineral called “Remyte Solution” by Dr Carolyn Dean, the same brand Don told you about. It’s one of the best I’ve tried. Very expensive, but it does the trick to lift me up when I feel a little weak.
        I frequently (maybe every 3 months) check my vitamin D and calcium levels : remember, great doses (only form supplemets though) of vit D can give you hypercalcemia, which is NOT good. Anyway, using that dose, my Vit D blood levels are around 50 ng/ml, which is perfect, according to most sources, and that’s defenetly achievable even with the natural way, so by the sun. I know this, because during summertime, as I mentioned, I don’t take any supplements for months, and my levels are near 80 ng/ml, at 78 to be exact!
        I know Poland it’s way colder and less sunny than Italy, but as soon as you can, try to expose yourself to the sun, it’s very important.
        I hope I didin’t bother you with my long answer and let me know if there’s soemthing else I can tell you about.

        • Madge Hirsch February 5, 2021 at 12:10 pm

          Hi Andrea- you have to remember that you are young still so your sunbathing works! Old skin makes much less vit D so those over 60 should not rely on sunbathing in summer without getting tested to make sure they are making enough. Sunbathing also has other good benefits. It releases nitric oxide which helos with liwering blood pressure and also helps with serotonin production improving mood.

        • Andrea February 5, 2021 at 3:21 pm

          You’re right Madge, the benefits of the sun are much more than “just” vitamin D production. There’re benefits to eyesight too. Of course, everything in moderation, as always.

  27. Don M February 4, 2021 at 8:23 am Reply

    Gauging Magnesium Deficiency Symptoms. The need for magnesium supplementation. https://drcarolyndean.com/2010/06/gauging-magnesium-deficiency-symptoms/

    • John February 6, 2021 at 9:55 am Reply

      Thanks Don. I looked into your articles and will try with different magnessium kinds. It may be a good direction. I also added buckwheat to my diet – every few days for now.

  28. newdarktriad2015 February 4, 2021 at 12:24 pm Reply

    I need advice floxies.

    Finally saw a podiatrist/foot surgeon who says there is > 50% thinning of the peroneal tendon and it appears to be hanging by a few threads now. I am also doing damage to my soleus muscle by pulling on it. After nearly 4 months with zero improvement (some days it feels like it’s getting worse), it is unlikely to get better on it’s own.

    He believes with surgery I will make a full recovery. This is where the majority of my floxing remains, as I was only hit in this one tendon. I feel the risk of not having surgery, at this point in my life, is equal to having surgery. As my muscles atrophy, as old injuries flare up from inactivity, as time off with disability for my job ticks away, as my mental health nosedives, I cannot wait a year or two and risk that it is still not healed. I’m 31 years old and was just hitting the prime of my life – if I wait that long, I will literally lose everything I still have.

    However when I posted this on the Reddit forum, I was met with skepticism by one of the moderators, who expressed in a rather fear mongering fashion that I could do “significantly more damage” because it’s possible I have “no healthy /healthily-recovering tissues to stick back together”, and that the 4 month recovery period is for healthy people, not me.

    I wish there wasn’t this kind of negativity and perpetual state of fear paralysis of some floxies. I have talked to floxies on that subreddit who have been in a wheelchair for 9 months, unable to take one step, and they will not even try an experimental peptide yet. I simply cannot resign to a long term life of this.

    if the tendon was fully rupture I’d have no choice but to have surgery. But of course, now he has me questioning myself.

    Did anyone have a tendon repair done and what was your experience?

    • John February 4, 2021 at 1:50 pm Reply

      I’m not a long time floxie but I’d advise you to consult with multiple doctors before you decide for a surgery. Surgeons are known to send people to the surgery sometimes even if’s it’s not necessary because it’s money for them.
      And about a “leap” year for your recovery: The most important thing is your health, remember about it. When you recover, you will build from scratch.
      About tissue state… the is a test called Sodium MRI. You can do that to see how collagen is organized in your tissues. This test is not easily available though.
      Read this: https://www.sportsinjurybulletin.com/fluoroquinolones-and-injury/

    • Andrea February 4, 2021 at 3:29 pm Reply

      Hi newdarktriad2015, unfortunately, I can’t give you any direct suggestion, as I’m not suffering from the same problem you’re suffering, but, I can suggest you one person I think could be of great help. His name is Neal Millar. He’s a Scottish orthopedic surgeon and, I belive professor, at the Glasgow University. He was the one who spoke at the EMA hearing in London back in 2018 (I was part of that hearing as a speaker) and I rememebr he was the one who got all the applause at the end of his intervention. He seemed to be very interested and aware of the damage fluoroquinolones can cause, I even sent him an email a few days later after the hearing to thank him.
      Maybe you could try to contact him, and tell him about your problems. I’ll post the post the video of the EMA hearing, Dr Millar’s intervention is at 3:10:35

      Hope this helped…

      • Barbara Arnold February 5, 2021 at 4:17 am Reply

        Really good advice Andrea. Seconded.

        • Andrea February 5, 2021 at 10:47 am

          Thanks Barbara. I hope you’re doing fine, well at least in floxie terms…😊

      • John February 7, 2021 at 2:22 pm Reply

        Thanks for your participation Andrea in that meeting. I hope these drugs will be banned someday like hard drugs are banned. I’m not going to sue the doctor who prescribed me it but I’m going to him once again to make him understand the seriousness of the situation so other people won’t get floxed from this doctor anymore…

        • Andrea February 9, 2021 at 3:23 pm

          John, I understand, but don’t expect this doctor or another one would understand. Most of them just don’t care, they’re clueless and they’ll remain that way, trust me.
          But you’re doing a good thing by going to that idiot and show him like it is. That’s for sure.

  29. Barbara Arnold February 5, 2021 at 4:29 am Reply

    For those of you who want to learn more about the vaccines, this link is very important in my opinion. She is not only a Doctor, but a lawyer as well. It does take around 50 minutes, but I really learned a lot.https://rumble.com/vd2y2j-banned-from-youtube-dr.-simone-gold-shares-the-truth-about-the-covid-19-vac.html

    • Don M February 5, 2021 at 7:34 am Reply

      Barbra Arnold …. WOW! Very interesting talk.

    • Barbara Arnold February 5, 2021 at 7:50 am Reply

      Thanks Don, I thought so to, and I persuaded my husband to watch it and he was well impressed.
      I’ve seen so many Doctors Scientists being censored, including Dr. Mercola, I wonder why. What are they afraid of. They can’t accuse these people of being conspiracy theorists as they are scientists. So what’s going on ??
      Here’s what the vaccines cost on average. The mind boggles at how much these companies are making, billions and billions.
      Pfizer given in two doses around 19.50 dollars per dose
      Moderna given in two doses around 32 dollars per dose
      J&Johnson given in 2 doses around 10 dollars per dose
      Astra Zeneca given in 2 doses around 3 to 4 dollars per dose
      Novavax two dose vaccine estimated to be 16 dollars a dose.

      No wonder they want us all vaccinated. At least the Astra Zeneca one is none profit as I understand it.

      • Don M February 5, 2021 at 8:54 am Reply

        Barbra Arnold … Another 28 minute video about the negatives if the “experimental” vaccines that are being pushed around the world. https://rumble.com/vbowfx-the-truth-about-the-coronavirus-vaccine.html

      • Don M February 5, 2021 at 9:15 am Reply

        Barbara Arnold …. Does one know which of the vaccines is being used when they consent to getting it? When I was in the U S Air Force there was shots day. You walked through the line and the tech gave you 3 shots at once. We never knew what they were for. We just had to get them.
        This “experimental” covid vaccine is very scary. No one has any idea of what the person might encounter in the future.

        • Barbara Arnold February 5, 2021 at 10:01 am

          I’ve seen that video on twitter Don. Lots like it. Good info.
          I live in Spain and so far they are saying the AZ one will not be given to over 65’s and are thinking to drop that down to over 50’s. They are going to give it to health workers first?????
          Europe is in a row with AZ and the UK trying to bully them into getting it before the UK even though they didn’t order it until 3 months later than the UK and even then only paid half. So because of that they are dishing out misinformation saying its not any good for over 65 year old because there were not enough people over 65 in the trials. How Spain could store the Pfizer one anyway beats me. It has to be stored below 70%. Anyway they can stuff it. No way would I take it. There’s more and more info coming through now from verified sources. To tell you the truth, being a floxie I don’t want any of them, I’m just hoping my family can get out here in the summer. I haven’t seen them for 16 months. I missed the whole of my Grandsons 12th year.
          None of us know enough about these vaccines and I worry about us floxie’s.

        • Madge Hirsch February 7, 2021 at 6:03 pm

          Hi Don- the guy over at My Quin Story has an article about chloroquine and it’s relation to the FQs. Hydroxychloroquine has a less toxic profile but as a floxie I would be very reluctant to take it. It’s main interest is as a zinc ionophore ie it helps to shuttle zinc into cells and it is the zinc that stops viral replication. Mercola says that Quercetin works as a zinc ionophore too and you don’t need a prescription for that. There is an article about a Dr Zelenko who has been using hydroxychloroquine with zinc and azithromycin to treat covid patients on the Mercola website today.

    • Madge Hirsch February 5, 2021 at 3:45 pm Reply

      I watched this video and I have one or two problems with it. I don’t know when it was made but to say that hydroxychloroquin is available over the counter in France is not true. It was withdrawn and the same nonsense forbidding it’s use came in very early here along with the medical establishment and media persecution of Prof Raoult one of the first advocates. She also seems to be ignorant of the vit D element as far as BAME people is concerned. If Africans in sub Saharan Africa are not dying of covid it is because there is enough sunshine there to give them high vit D levels. But BAME people in the Northern hemisphere are dying at a much higher rate than white people probably because they are vit D deficient. And it is just not true to say thag this is only affecting South Asian and MENA communities in Britain. It is affecting African and Caribbean communities too.
      I totally disagree with the position on masks as well. I believe in America this has become politicised and is presented as a right / left issue. She also makes no mention at all of long Covid which is a possible complication of even mild covid infection and is striking people in younger age groups – particularly women. Of course there is no data yet on whether the vaccines will prevent this.

      • Barbara Arnold February 5, 2021 at 11:22 pm Reply

        Hi Madge,
        I’ve got confused. Which Doctor are you talking about.

      • Barbara Arnold February 6, 2021 at 12:07 am Reply

        Oh, just realised who you mean Madge, Dr. Simone Gold I think. Yes I agree about the hydroxychloroquin, I believe it’s a cousin of fluroquinolones, correct me if I’m wrong. I read a lot of stuff and this seems to ring a bell with me to not take it.
        The rest of what you said I also agree, apart from the masks, but it’s irrelevant really as they are mandatory here in Spain. I can’t wait for the day when we don’t have to wear them anymore.
        The purpose of me posting the video was to give information from a good source, imo, about these vaccines. I thought she was very informative and agreed with what she said about the vaccines and just not knowing the effects of them long term.
        I think your right about things being politicised, and I try to ignore anything in that vein.
        Long covid, I’m not sure about because I have no data or information on it apart from opinion. I have read that a lot of covid patients being given fluroquinolones, could this, in some cases be a contributor to long covid ?? Who knows, but my guess would be, maybe in some cases.

        • Don M February 6, 2021 at 5:16 am

          Barbra Arnold … What is the correct treatment of a floxie for the COVID virus? As time goes on a person is more likely to come in contact with the virus. Doctors who seem to know are discredited by the information (misinformation???) disseminated by the main stream media and doctors who don’t believe there is such a thing as “floxed”. What doctor can be trusted to be doing the “right” thing when treating a floxie for the COVID virus? We certainly do not want to worsen our problems with the wrong approach.

          I posted some rebuttal information to the assertion by Manny that Dr. Gold was an “instigator” when referring to the Capitol incident. The posting was immediately tagged for “moderation” and has since disappeared. Is floxehope becoming one sided too?

        • Barbara Arnold February 6, 2021 at 7:16 am

          Don,
          Your right, what is the correct treatment for a floxie, or even the rest of the population. I’ve just read Israel is working on a cure. So far a very small amount of people ie 30 they have had a great success with it. Obviously there is a long way to go, but who knows.
          Yes Don, I tend not to take any notice of some one who posts an accusation with no evidence. Any one could accuse any one of anything if this were the case.
          I hope there is no censorship here, but I think you have to be careful how you word things, as it can be picked up and lost by a b.ot, Just like my post was when I used the word s.e.x. without the full stops.

        • Barbara Arnold February 6, 2021 at 7:26 am

          Don,
          By the way I believe I had covid before the first lockdown in March. I think I had it in the previous November. I’ve read a lot since that it’s been around even before that. My symptoms were full body aches and pains, really sore throat, like cut glass, lost 5lbs in weight (always a positive lol) and took three weeks to recover. Initially I thought it was the flu, but I had, had the flu jab, so couldn’t understand it, as I hadn’t had the flu for around 12 years. I now believe it was covid, which I recovered from with no long term effects. Hope this is the case as it make help some floxies, but of course this is my experience.

        • Madge Hirsch February 6, 2021 at 6:28 pm

          I am suspicious too as far as the vaccines are concerned and I agree with what she said about them being experimental – there are some in the pipeline that are more like traditional vaccines but they have not been approved yet. Long Covid symptoms are very much like those of being floxed but then being floxed has been compared to having ME which is thought to be a post viral syndrome. I don’t think all those with long covid will have been given an FQ as many had no hospitalisation. I suspect it comes down to the mitochondria – that somehow covid leads to mito dysfunction just as being floxed does. I am not eager to have the vaccine. I am really pissed off with my latest relapse as it’s the worst I’ve had for ages and suspect it’s been brought on by the trauma of the op. I’ve even wondered in a paranoid fashion if they might have given me an FQ for the prophylactic antibiotic despite it being in my dossier that I’m allergic. I’m sure I would not react well to the vaccine. My husband dies not want it either.

        • Madge Hirsch February 6, 2021 at 6:43 pm

          Manny is right. There is an article in the Guardian about her being at the Capitol riot and admitting to being there.

        • Barbara Arnold February 7, 2021 at 12:19 am

          Like I said Madge ‘my guess would be long covid could be a result of being given fluroquinolones in some cases’ not all. Again it’s a guess, but from what I’ve seen/read it wouldn’t surprise me.
          Just like ‘fibromyalgia’ could be a result of being given fluro’s. I actually met a woman on holiday a couple of years ago who had ‘fibromyalgia’ and after asking her if she had ever taken a fluro, it turned out she had taken cipro. I suspect because of the nature of this poison there are hundreds of thousands that will never know why they are so ill.
          I can’t tell you how sorry I am to hear your suffering so much after your op. No wonder your so pis.sed off having come so far. What a bum.mer. You had a major op Madge and anyone who hadn’t been damaged would find it hard, but you had a disadvantage to begin with. All I can say, is I hope with all my heart you improve soon, and get back to where you were. Stay strong, don’t give up fighting , give it time and you’ll get there. Even when your at your lowest, you can get through and come out the other side.
          Big Hugs xx

        • Don M February 7, 2021 at 1:04 pm

          Barbara Arnold … Please understand that I am in no way backing it but I ask the question about hydroxychloroquin. If it may have the same effects on a person as Fluoroquinolones wouldn’t the world be filled with those people now? It has been around for a long time.
          Wouldn’t Dr. Gold have a different opinion of it? If there were thousands upon thousands of people with adverse reactions to it wouldn’t it be well known by now?
          Would people whos DNA and mitochondria have been altered by the Fluoroquinolones react differently to it? So many unanswered questions and so few “honest” answers.
          To criticize someone or a group of doctors who are willing to come forward with what they believe is the truth is not very wise I would say.

        • Barbara Arnold February 8, 2021 at 10:04 am

          No John , sorry I can’t, but I’m begining to think I don’t want any of them.

    • John February 8, 2021 at 7:07 am Reply


      Could you identify which approaches are used by which vaccines? The second one in the center seems to be the safest IMO, but I’m not an expert. And I’m not sure if the approach matters as much as pharmaceutics used as ingredients.

      • Barbara Arnold February 8, 2021 at 10:09 am Reply

        You might like to watch this.

      • Barbara Arnold February 8, 2021 at 10:13 am Reply
        • John February 8, 2021 at 1:20 pm

          Thanks for sending the speech, Barbara, it was interesting. Didn’t know they skipped animal trials. Fortunately in Poland we can still choose if we want the vaccine etc, but unfortunatelly we can’t choose which one. Is the same true for UK?
          I wouldn’t even think about getting vaccinated, but with asthma I’d like to avoid the Covid as well. But if there are many severe side effects reports, I will pass of course. I’m quite young so I still have a couple of months to decide.

        • John February 8, 2021 at 1:22 pm

          Oh, sorry, I meant Spain instead UK.

  30. Manny February 5, 2021 at 4:32 pm Reply

    Simone Gold was an instigator at the Capitol invasion and was arrested for it. She doesn’t really sound like a very logical thinker.

    • Manny February 6, 2021 at 4:18 pm Reply

      Barbara, It’s not an unfounded accusation. I’m just trying to be helpful. She was at the front of the people holding a megaphone, where people were trampled. She has been arrested and she admits fault. She’s Photo 21, FBI Most Wanted, and the photo is marked “arrested.”

      https://www.fbi.gov/wanted/capitol-violence

      There’s also videotape of her among the first people entering the building.

      There are many doctors who support us but I don’t think this particular one has very good judgment. Best to move on.

      • Barbara Arnold February 6, 2021 at 11:56 pm Reply

        Thanks, but Iike I said, I try to avoid anything political as people have such strong feelings both ways, also I’m British so I can’t comment anyway. To me what she said about the vaccines was good information which I posted because I think it’s important to us all. It’s up to each person whether they agree with her or not, I just happen to.

        • Don M February 7, 2021 at 5:42 am

          Barbara Arnold …. I agree with you that politics and one’s position is everyone’s personal thing. Having said that my problem is with the word “instigator”. Just because she was there and was saying something does not warrant the branding of “instigator”.
          Yes, she was there and arrested. So were many others. She claims to have been there repeating parts of her previous speeches. It has been revealed that there was planning ahead of time by some “subversives” to infiltrate the crowd and promote the thing that followed. If this is true how can she be branded as the “instigator”? Anyone who is committed enough to repeatedly stand in front of an audience for an hour to detail her thoughts about COVID-19 and the treatments out there can’t be all wrong. Branding her as an “initiator” is not correct. She, because of her occupation certainly knows a bit about the issue. I also listened closely to what she had to say about COVID-19.

        • Barbara Arnold February 7, 2021 at 6:35 am

          Yep Don, I wish I had a Doctor like her. Mine is so ignorant, it beggars belief. I have been gaslighted so many times from the medical profession, it would be great to actually have a Doctor that actually was interested in what you have to say, instead of treating you like an idiot.

      • Manny February 7, 2021 at 2:30 pm Reply

        I understand the strong impulse to want to believe something that is comforting or easier to understand, or that appeals to us emotionally, and I have fallen for many simple answers along this horrible floxing path. But we need to put our faith in doctors like Dr Bennett and Dr Golomb, who are doing the hard, labourious and thankless work of unravelling the damages floxies suffer and what, if anything, can be done to help us.

        I personally do not feel I would do well with the vaccines, as I am sensitive, as many of us are, to even a sip of caffeine, bits of certain foods, temperatures, movements, the list goes on and on. Hydroxychloroquine is another drug I would not, as Lisa wrote, “touch with a ten foot pole”. Unfortunately, this is my lot, to live with the intense frustration and uncertainty about what to do and the intense, and realistic, fear of not just not getting better, but relapsing and getting much worse at any time for reasons I do not understand.

        This is very hard and there are no easy answers.

        • Barbara Arnold February 7, 2021 at 11:16 pm

          Yes Dr. Bennett and Dr. Golomb are doing great work, and there are a few others, and I follow a lot of great jnfo from them. However they are not here helping me, which leaves me to be my own Doctor to help myself. I for one don’t believe anything easy or not easy before I thoroughly research it first. I hope all of us do that, before we take anything that might or might not help us. If I ever get asked what helped me, I always recommend looking into it before they try it.

          Fear is an awful thing Manny, and although it’s the bodies response to protect you, sometimes it can hold you back. Mind and body work together, so any stress can may us worse. I experienced this when my husband was ill, it caused me intense pain emotionally and psychically. If you can learn to meditate, this can rebalance you. There are a lot of ways to learn, and there are a lot of meditations on U Tube.

          My advice to any one who has made the decision to do or take something is to start low and slow, and only one thing at a time to see what response the body does. I to, took far to many things in the begining, out of desperation. The trouble is when you do that, you don’t know what helps and what doesn’t. I have a very small regime now, and it works for me. I am 77 years , 6 years floxed and these past few weeks have been walking further than I thought I ever could in the last 6 years.

  31. Dee February 7, 2021 at 9:50 am Reply

    Jason-moderator
    I have followed Floxie hope for 3.5 years since I have been floxed and noticed that I haven’t seen a new recovery story in many weeks?? Have you just not received any new stories and maybe not posting them or have you just not received any new recovery story?? Usually every so often there is a new story?? Just curious and hoping there are newly recovered Floxie’s!!! Thanks for your efforts in taking over the website from Lisa!! Appreciate!!!!

    • Barbara Arnold February 7, 2021 at 11:18 pm Reply

      Hi Dee,
      How are you doing ? I hope you’ve had some improvement.

  32. Dee February 8, 2021 at 12:27 pm Reply

    Hi Barbara! Thanks for asking about me! I’m doing pretty well. At 3.5 years out I’m probably 80-90 percent better? I was pretty severe for the first couple of years….lost 50 lbs, daily horrible terrible insomnia( slept 2-3 hours a night) horrific anxiety and fear, ongoing loud tinnitus, lots of autonomic nerve damage, neuropathy, dry eyes, mouth, ears. Extreme fatigue, skin rashes, muscle atrophy, sore joints, dizzy and in a brain fog that was like living on another planet!! There were more symptoms but can’t think of them all. You get the picture! I’m “mostly” back to feeling somewhat normal! I’m sleeping well, tinnitus is very minimal now so don’t really notice it. I have put back on all my weight plus more ( could lose some more now!). My brain is much more clear, although I have my moments. My collagen loss is still affecting my skin as a developed eczema about 2 years out which I never had before but I can live with it. I don’t have the physical stamina and strength that I used to but then I have not been very good at starting and exercise program or walking more. I’m sure that would help me gain strength and stamina if I would get my rear in gear!!! My biggest fear is taking future medication if I will need them and of course fear getting the Covid shot. I’m 65 so I know I could stand to get vaccinated but am scared of it! Someday I may need antibiotics or steroids and will probably be scared to take those!! Not a fun fear to have as you get older! Anyway I did finally start drinking coffee again at 3 years out so am happy for my coffee!!! I was a wine drinker before getting floxed and have tried a wine spritzer now and then in the past few months but don’t tolerate it too well. One is about my limit so miss my wine! Hopefully that might improve!!?? Other then that I’m taking one day at a time and hoping that as more time goes by everything will keep improving even more!!?? I have read that cipro takes about 5-6 years to almost completely leave your cells?? Onward and upward!! Sounds like you are doing pretty well?? Would you say that you continue to improve with every passing year?? I hope so!!! Lots of hugs!!! Dee

    • Christopher February 9, 2021 at 5:54 pm Reply

      Hi Dee. I took Doxycycline at just 2.5 months out (now 4 months) and had no adverse reactions to it. I, like you, was very nervous. I also have tolerated gabapentin and opioids. My main issues are ankle tendonopathy, peripheral neuropathy of my hands, and eye floaters. I also had skin changes due to the loss of collagen in my feet. So glad to hear you’re near 90%

  33. Barbara Arnold February 9, 2021 at 12:11 am Reply

    Wow Dee, you’ve come a long way. I’m so glad your getting there. Time does play a big part in this crap that we have to go through. I hope you continue to improve. I would be wary of taking any future steroids though as I’ve seen a lot of floxies relapsing after taking one.I myself have taken amoxillin with no problems, seems to be the most benign one for us. But your right who knows as we are all different.
    I can drink both coffee and wine, but I’ve noticed if I drink alcohol I do feel a bit rough the next day, and that’s after only one glass. But hey I enjoy it, so I accept it as I generally only have it on the weekends. (Old habits die hard ) I also want to live before I die.
    Apart from high creatinine levels which effect the kidney’s, I’m doing well. Pain in my legs, and feet at night which wake’s me up. After a trip to the loo the pain goes and I go back to sleep. Weird eh. I’m seeing the kidney specialist again in March, so I don’t think I’m that worried as I have no symptoms of kidney problems. In the meantime, I’ve started to walk more, forced myself, and built up slowly. Now I up to around 2 and a half kilometers. Never dreamt I could do that at this late stage. Not easy, but I’m determined. I have to lose weight, so I’m hoping this will help.
    I think you’ve made massive strides forward Dee, and long may it continue.
    Start your walk a little at a time and build up, you’ll feel better afterwards.
    Yes, I have improved with every passing year, but with relapses along the way, so you just have to keep going until you get there. I’m around 90 to 95% back now. At 77 years, I’ll take that.
    If your a younger floxie, I think you’d do better.
    Big Hugs back Dee and stay strong.

  34. Andrea February 9, 2021 at 3:28 pm Reply

    Hey guys, I’ve a question : how many of you, males or females, experienced bladder or urinary issues after getting floxed?
    Please answer, it’s important for me to try to understand certain things. Thanks.

    • John February 9, 2021 at 4:23 pm Reply

      I experienced some of the urinary issues, particulary nocturia. I drink a cup of tea or water before sleep, but I have to go to the loo like 4 or 5 times. I can’t sleep without that because of little pain in my bladder. But I did experienced that symptoms earlier. I think it’s because of many drugs I took, I still take allergy pills, I took steroids earlier. I heard that steroids’ adverse effect is nocturia.
      TBH, it’s not very annoying for me. The worst part of being a floxie is being unable to walk, pain in tendons, stiff joints, anxiety, fatigue.
      Is the nocturia your main concern?

      • Andrea February 9, 2021 at 5:40 pm Reply

        Let’s say my main problems now are extremely frequent urination (day and night) and chronic pelvic pain and incomplete bladder emptying. These 3 alone are my main problems. It’s been 4 years (since getting floxie) since I have been able to get a full night sleep. I’m sleep deprived and that’s horrible. Certenly the chronic digestive issues and the pain in the lower legs are ugly too, but the urinary issues are the worst.

        • John February 10, 2021 at 3:32 am

          How often is extremely frequent? When did it started? Soon after floxing or later?
          I had a full night sleep maybe a month after cipro. But it was an exception. I wake up 4/5 times and during the day sometimes I pee every hour, sometimes 20 min, sometimes even 2h. Its easier to overcome the need during the day.
          Why are you asking? Whats your hypothesis?

        • John February 10, 2021 at 3:38 am

          It must be fluorine which causes that because as i said steroids cause nocturia and they contain fluorine like cipro. Which toothpaste do you use? I switched for a non-fluorinated after cipro and it made some digestive symptoms better.Water is not fluorinated here luckily.

        • Andrea February 10, 2021 at 3:37 pm

          John, I just want to understand how many of us experience this kind of problem. I’m quite sure it all went downhill after taking the FQ. Let’s say I’m just trying to do a survey 😊

    • Dee February 9, 2021 at 4:27 pm Reply

      Andrea, I have a lot more incontinence now and have to pee frequently! I need to empty bladder much more frequently and urgently!

      • Andrea February 9, 2021 at 5:45 pm Reply

        Thanks Dee.
        Can I ask you if you ever had any of these problems before and how old are you?
        Me, I already had urinary problems, it was the reason I was prescribed a FQ, even if these problems weren’t infection related SMH…but after taking the antibiotic they greatly increased!

        • Dee February 9, 2021 at 6:42 pm

          Andrea, I am older…I am 65. I was starting to get a little incontinent before floxing but didn’t have to get up in the middle of the night or extra early to pee. My urgency to pee is much more increased since floxing along with much more incontinence. There is no question in my mind that my bladder has most likely had some kind of nerve damage or bladder damage. It is much weaker then before 😡😡

        • Barbara Arnold February 9, 2021 at 11:14 pm

          Andrea,
          It seems to be a frequent thing for floxies, that the fluroquinolones attack the weakest things you have. So if you had bladder problems beforehand, I would think the fluro made it worse. Don’t know of course, but it’s what I’ve seen in a lot of us.

      • Andrea February 10, 2021 at 3:41 pm Reply

        I agree Dee. I was suffering from some urinary problems (they all started after a varicocele surgery) but a couple of weeks after the FQ, it all went downhill. A lot!
        And you’re right, that’s probably due to some nerve damage in the bladder or even a damage to the autonomous nervous system.

    • Barbara Arnold February 9, 2021 at 11:09 pm Reply

      Andrea,
      In all my life I never had any bladder problems until cipro. Then, can’t remember exactly when but a couple or so years after cipro I had an extreme pain in my bladder, bent over, holding my stomache pain. I went to emergency in my local health centre and they gave me penicillin, luckely it cleared up. After that I took D mannose for a while. Then around another year or so a micro spot of blood was found in my urine. I saw the specialist, was examined, embarrassing and horrible and was all clear. I still have that micro spot of blood in my urine.
      I find it annoying that during the night, it’s not my bladder that wakes me up, it’s the nerve pain either in my feet or legs. Once I empty my bladder the pain goes and I go back to sleep. I don’t know but I think if I didn’t have the pain I wouldn’t wake up so much. This can happen, once in the night, or several times during the night. I do go more now than I used to but I put it down to age. I have no incontinence.
      It’s not normal to empty your bladder so much in the night if your young. It generally starts sometime after the 50’s but even then I know my bladder was working normally.
      Hope this helps.

      • Andrea February 10, 2021 at 3:43 pm Reply

        You’re right Barbara. FQs trigger your weak spots, so it probably aggravated an already weak situation. My bladder started to go real crazy after a couple of weeks after the FQ.

    • Phillip February 10, 2021 at 6:26 am Reply

      I had various urinary problems, like burning inside the urethra, weak urine flow, frequently urination and I think they escalated after cipro. However, abstinence from s.e.x seems to reduce these symptoms. I don’t know exactly why, but thanks to it I’m able to sleep well at night, sometimes without any disturbance. Also, I’ve discovered recently, that the time of the coitus seems to play a key role – if I do it in the morning, everything is almost ok (I wake up once or twice), but evening equals a sleepless night because of the symptoms. A few days of abstinence totally reduces in a full night sleep. I don’t plan to live in the celibacy forever, but it’s nice at least to have a technique that allows me to sleep well when I need to.
      Try celibacy for a week or two and see if it helps. It probably just works for me but you won’t risk anything trying.

      • Andrea February 10, 2021 at 3:47 pm Reply

        Hi Philip.
        In my case, I’ve noticed that there’s a balance I have to keep. If I abstain from s.e.x too much, let’s say 2-3 days, the pain increase. But, if I do it “too much”, let’s say 2-3 times a day, it become painful too. But I don’t know if this just the bladder, the urethra or more likely the prostate. Have you ever checked your prostate?

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